Patient Comments: Restless Leg Syndrome - Symptoms

What symptoms did you experience with your restless leg syndrome (RLS)?

Comment from: TanyaR, 35-44 Female (Patient) Published: October 11

I am 38 years old. My symptoms started when I was a child. I was diagnosed with "growing pains," "it was all in my head" and "stretched ligaments" and "high arches". I've been microwaved with a circle like thing, had acupuncture, tried Vicidon (kept me up all night), tried natural pills and requip. The only relief I found was soaking in a HOT bathtub, no cold water. Someone please give me some advice, because you all know how miserable it is.

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Comment from: Bporche, 45-54 Female (Patient) Published: September 16

I have had RLS for over 25 years now and have been through Requip, Sinement and another that I do not recall (I think it was Savella) and none worked for any length of time. The best cocktail so far has been gabapentin and klonipin. I experience severe pain when at rest and most of the time movement is the only solution. I'm not ready for the opioids yet. I can't wait for Horizant to see how well it works. Peaceful and non painful sleep seems like a dream sometimes.

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Comment from: shelley, 45-54 Female (Patient) Published: September 16

I can't stand another night of not sleeping. I have a very busy life looking after a lady with ms and a handicapped man who lives with me. I have 3 adult children as well. Somebody please tell me what I should take. I stopped dairy for a year and it did help but I no longer want to go without milk products unless I have to. My doctor prescribed Quinine and it made me pass out. I will do almost anything at this time.

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Comment from: dikins, 65-74 Female (Patient) Published: August 11

I am 66, start having restless leg about 3 months ago. When I told my doctor about it he put me on pramipexole. It worked for a little while, but then I started having horrible dreams. This is one of the side effects. Now it just takes too long to work if at all. I think I will try something else to help my condition, but not by prescription.

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Comment from: andrea, 45-54 Female Published: August 10

My restless legs started about 25 years ago at a time when I was running a baking business. At that stage it involved my whole body "jumping" involuntarily and when standing my legs would "wobble" at the knees, I was then unable to walk for a period of about 10 months. I gradually improved and my walking returned and jumping legs happened only at nighttime just before falling asleep or after long time sitting. By chance I gave up gluten a year ago, as I had cramps and bloating, and I suddenly realized after a few weeks that I no longer had restless legs, if I do break out and eat bread/gluten I get jumpy legs. There has to be a connection!

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Comment from: katl72, 35-44 Female (Patient) Published: October 08

I'm 40 years old and I don't remember if I had issues as a child. I do know for certain that the more stress I'm under, the more I have restless leg syndrome (RLS). I take too much medicine (over-the-counter, not prescribed) more than I should to fall asleep and sometimes that's not strong enough. I'm hoping when my stress level gets lower I will be able to sleep normally again. It's almost to the point that I don't look forward to sleeping until I can't keep my eyes open anymore.

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Comment from: Chi-town Girl, 35-44 Female (Patient) Published: August 16

I have been suffering from severe RLS for many years now, my arms and legs are affected frequently. I have finally found two things that work for me quickly so I can go to sleep, though I don't have a solution for during the day sitting somewhere. The first thing I found was laying on my stomach with pillows propped under one side and my arms pinned under me with my feet off the end of the bed so I can rub them together works, but don't know why. Then I found Hyland's Restful Legs at Walgreens! This works almost instantly for me, I am so happy to have found it. I keep it in my bedside table and use it often!

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Comment from: dljodin, 55-64 Female (Patient) Published: August 16

I have had restless leg syndrome since I was a little girl. Everyone in my family has it to some degree, but I have it the worst. I suffer with it almost all day, everyday. I remember getting in trouble in fourth grade because I couldn't keep my legs still. I have been taking requip for years and it works great, just not for 24 hours like I need.I do have to keeps anti-nausea medicine on hand though for the times that the requips make me sick. When I can't take the requip for whatever reason, I do take vicodin which helps, but then I have to take benedryl because the vicodin makes me itch so bad. I am so sick having to take medicine, but glad that it's there. Anything is better then the misery of Severe Restless Leg Syndrome.

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Restless Leg Syndrome - Experience Question: Please describe your experience with restless leg syndrome.
Restless Leg Syndrome - Treatments Question: What method did you find most effective in treating your restless leg syndrome?
Restless Leg Syndrome - Remedies and Alternative Treatments Question: Please share remedies and alternative treatments you've tried to manage restless leg syndrome.

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