Patient Comments: Reflex Sympathetic Dystrophy Syndrome - Treatment

What kinds of treatment, including medication, have you tried for your RSD?

Comment from: Jackie dear, 45-54 Female (Patient) Published: December 10

I am living with RSD (reflex sympathetic dystrophy). I am disabled and cannot sleep, and am very depressed. So I joined a center which helps with my pain and mental state. I have found it hurts to exercise but I hurt more the days I don't.

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Comment from: eye, 45-54 Female (Patient) Published: July 30

I am 48. I have had reflex sympathetic dystrophy (RSD) for 22 years. I have a great doctor. I take my medicines and nerve blocks to help as well as a spinal cord implant. They all are very helpful. Everyday it's a different pain. Some days are fine, while others are rough to deal with. Always talk to your doctors and tell them how you feel. Never give up hope.

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Comment from: 55-64 Female (Patient) Published: June 17

With RSD I experience painful stabbing, burning, almost like an electrical shock on the left side of my tongue, and numbness on left side of lip. When pain is extreme, it is hard to eat or swallow. I have been to two neurologists and an ENT. They have tried Cymbalta, and an anti-seizure drug, no help. Both drugs had side effects and did not stop the pain. It started after going to the dentist.

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Comment from: Debbie R., 35-44 Female (Patient) Published: March 13

I've found that swimming works wonders. I tried the spinal block but it didn't work, I have severe nerve damage to my right foot/ankle. My doctor was trying to straighten out my leg after a total knee replacement/fall out of hospital bed. I had nerve conduction test that showed my nerves are nonexistent and also got atrophy from having leg in cast for 6 months. My skin is shiny, no hair growth, and I have constant burning, swelling and sweating.

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Comment from: jus, 25-34 Female (Patient) Published: December 16

I have been diagnosed with RSD and so far no treatments have worked and I'm in constant pain. I have tried amitriptyline, Vicodin, Percocet, nerve block injections, tramadol, Lyrica, and steroids but none help.

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Comment from: fiona, 45-54 Female (Patient) Published: November 21

After radical mastectomy 2010 for breast cancer I have suffered from nerve damage/chemotherapy damage and the worst- constant pain from radiation damage to my lungs and heart! Now I have been diagnosed with RSD. After giving up codeines twice I'm having to manage my pain without pain-relief (left hand knuckles very sore and swollen).

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Comment from: lozzieb, 25-34 Female (Patient) Published: October 22

I had RSD whilst in high school, I had it for nearly 3 years and I was living in a hospital. I had it in my foot which meant I couldn't walk, the pain was so severe. As hydrotherapy and physiotherapy didn't work they opted for giving me an epidural numbing me from the waist downwards. I was like this for 3 weeks, I got told I would never walk again. This was awful news, being only 15 my life was torn apart. I am now 23 but I promised myself I'd not let it beat me; it took me 3 years but I walked out that hospital. The only downfall is that it is never gone, it can return at any time.

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Comment from: TinyCookie, 55-64 Female (Patient) Published: October 15

The month before I turned 55, I fell doing housework and broke my arm and wrist in 3 places. I went through surgery to have a pin, plate and 8 screws to put my arm and wrist back in place. I was going to rehabilitation and working out at home also, but the pain was too great and I still could not bend my wrist. After 3 months, the surgeon recognized the symptoms as RSD and referred me to a pain specialist. Next week I am scheduled for a nerve block injection.

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