Patient Comments: Raynaud's Phenomenon - TreatmentsWhat was your treatment for Raynaud's phenomenon?
Comment from: whirllynn, 55-64 Female (Patient)
Published: May 08
I have Raynaud's phenomenon and have had it most of my life. It runs in my family. My father had it, my sisters have it and so do some of my aunts on my father's side. I have found several things that do work for me. # 1 I try to keep my hands warm as much as possible. Taking vitamins such as cod liver oil, fish oil, yucca and aloe which are all ant-inflammatory help quite a lot. Limiting caffeine especially sodas have helped as well as trying to eat healthy. Also exercise helps as it increases blood flow to the extremities. Hopefully, this helps someone out there. Was this comment helpful?Yes
Comment from: Lou, 55-64 Female (Patient)
Published: January 10
I have Crest Syndrome, in which Raynaud's is a part. I have worn mittens since October and hand warmers in the mittens or keep them in my pockets. I was diagnosed in March of 2011. My right index finger seems to be the worst. I am using nitro-bid on it and getting Marcaine injections. My doctor has talked about Botox injections, but insurance won't pay. Has anyone tried this? Did it help? I can't take most meds, because of gastric bleeding. If it (Botox )helps, I might be willing to pay for it. Was this comment helpful?Yes
Comment from: Mary, 55-64 Female (Patient)
Published: November 02
I am a 55 year old female with worsening Raynaud's. My toes and feet have had it since I was an adolescent. When I was about 48 my pinky began being involved in the winter. Last year my ring finger became involved. Now that fall has hit, all of my fingers are being affected. Wearing socks and gloves, taking warm showers, staying out of the cold and keeping my fingers dry are the only tips I can share. Was this comment helpful?Yes
Comment from: softball06, 13-18 Female (Patient)
Published: October 25
I am 16 years old and I was diagnosed with Raynaud's phenomenon last year. My Doctor said I can't really do anything to help it except stay warm and take my blood pressure pills. Well, nothing is working and I play travel softball all throughout winter, fall, and summer. No one in my family understands how it feels and I don't know what else to do. Was this comment helpful?Yes
Comment from: Rebecca Easton, 45-54 Female (Patient)
Published: January 05
I have had Reynaud's syndrome for several years, but it now seems to be worsening (although not as bad as other patients, apparently). I live in a cold climate, but continue to enjoy skiing and other winter sports. I make sure my hands/feet don't get cold by wearing high quality gloves/mittens and also using hand-warmers which are made for skiers. When an attack occurs, I get home as soon as possible and run them under warm water until they return to normal. Was this comment helpful?Yes
Published: April 10
I was finally diagnosed with Raynaud's in my right foot. I had many sessions in a hyperbaric chamber and finally got the Botox shots. They helped a lot. I think I will get them every winter. In my case, insurance did cover most of the cost. Was this comment helpful?Yes
Comment from: will-flo, 65-74 Female (Patient)
Published: March 29
All of my life I've been bothered by this malady. I had a stroke in 2010. Odd as it may seem – I'm healed of it. I have side effects of the stroke on my right side, especially in my arm, hand, foot and leg. I feel better now than I can ever remember. Why wasn't I properly diagnosed? It was not all in my head, as some implied. Was this comment helpful?Yes
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Raynaud's Phenomenon - Describe Your Experience
Question: Please describe your experience with Raynaud's phenomenon.
Raynaud's Phenomenon -Symptoms
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I have only been diagnosed by a doctor that works in the office where I work. He stated that I have Raynaud's phenomenon. No one knows how painful this is until you experience it yourself. It hurts like hell. My fingers on my right hand, when they get cold they turn white and it only happens to the three fingers between the thumb and little finger. It takes anywhere form 30 to 40 minutes for my fingers to warm up. There is a burning, tingling, shooting pain and it hurts really bad. He asked me if I smoked and when I said yes, he urged me to stop.