Patient Comments: Raynaud's Phenomenon - Treatments

What was your treatment for Raynaud's phenomenon?

Comment from: rabbit, 35-44 Female (Patient) Published: May 25

I'm 39 years old I found out I had Reynaud's phenomenon secondary. I found it out by my hands my fingers and toes were white frozen and swollen and very painful. I didn't know what was going on. I went to the doc and with one look he said u have raynauds. I was so shocked I had never heard of it before, and I have it how crazy. I had to stop my work as a cook as I could no longer deal with the cold and pain, this has made my life a living hell. I can't get up without being that frozen I can't move. I miss out on so many outdoor things I'm so sensitive the air affects me no air conditioner either just forget that. My ears nose eyelids all go cold and hurt too it's so horrible no one seems to understand it or me.

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Comment from: froggy, 35-44 Female (Patient) Published: May 24

I have Raynaud's phenomenon it's hell for me I was a cook. I no longer can do this, even shopping and cold fridges give me an attack. I use heaps of clothes all day and it's painful when I'm that cold I can't even move, I try to shower and after a min or two I have the pain of myself heating back up. I wish I never had this it affect my life greatly.

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Comment from: Helena, 75 or over Female (Patient) Published: March 22

I went to an acupuncturist for treatment and it works superbly; I just go back to him each fall for another treatment to get me through the winter months especially, even though it keeps me free from any symptoms from just walking through the coldness of a grocery store.

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Comment from: Sara, 35-44 Female (Patient) Published: March 22

I am 35 and have Raynauld's Phenomenon with Hyperhydrosis. I had it my whole life. When I was 18 I had 2 lumbar sympathectomys for my feet. The surgery was a success and I have had warm feet ever since. I am now going to have the surgery for my hands and am hoping for the same success. To cope with my Reynaud's I have had to move to a warmer climate and take baths after every attack. I use cotton gloves when I go outside. Summer is just as bad as the winter for me.

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Comment from: (Patient) Published: March 15

I have Raynaud's and have not found any relief except the obvious: move alot. Don't have a sedentary lifestyle --- it aggravates the condition. I take the dog for a walk/run when I need to get the blood moving. My condition worsens if I sit behind a desk and then sit in the car. We aren't meant to sit all day (at least I am not). I move whenever able and this lessens the symptoms considerably.

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Comment from: Freezing tootsies, 45-54 Female (Patient) Published: February 23

I was diagnosed w/ Raynaud's phenomenon in my feet 2 years ago, but I think I have had it since I was a little girl. I am a volunteer fire-fighter/EMT, but my PCP pulled me off all outside activities/rescues for the winter. I have tried the warming socks don't help. He tried me on Nifedipine and that gave me a horrible headache. I'm now wearing 2 pair of socks to bed at night with an electric mattress cover for warmth. I take Tylenol 3 for pain.

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Comment from: Sosi, 65-74 Female (Patient) Published: January 25

I find topical steroids help the swelling and pain from Raynaud's.

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Comment from: Marilyn, 35-44 Female (Patient) Published: January 07

I'm from Puerto Rico. I was diagnosed with Raynaud's phenomenon because of a post traumatic event! Eight months ago I had this trauma event, caused by a negligent nurse in a lab, who took my blood sample from my left arm causing my arm from this traumatic event to limit the arm to extend in a vertical position causing immediate hand swelling changing to red, dark blue, and cold temperature in hands and fingers. My Dr. discovered she damaged my middle nerve causing this condition so I'm still under treatment.

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