Patient Comments: Raynaud's Phenomenon - Describe Your Experience

Please describe your experience with Raynaud's phenomenon.

Comment from: ccc1027, 25-34 Female (Patient) Published: December 06

I have had symptoms of Raynaud's phenomenon for three years - mainly in one foot, starting in the pinkie toe and the colder it gets, the fourth and third toes change colors as well. I also get it on the same side in my pinkie on my right hand. An aunt of mine also has Raynaud's, and actually developed it the same year that I did, but hers is even worse than mine, requiring treatment for cuts and pain caused by the syndrome.

Was this comment helpful?Yes
Published: July 08

I am 24 and I live in Kentucky. I was diagnosed with Raynaud's when I was 16, and was told that there was nothing that I could do but live with it and try to stay warm. What people didn't understand is that it could be nearly 100 degrees F. outside and my fingers and toes would still freeze. It is the most miserable feeling in the world to be cold and in pain all the time and there is nothing you can do about it but sit and wait for it to go away. Luckily, when I got married in September, my insurance changed and I had to find a new doctor. How lucky was it that the provider I chose had written a thesis in college about Raynaud's phenomenon! She prescribed "Nifedipine" for me and I rarely have any problems anymore. The only side effects that I have found is that my heart races for a few moments after it kicks in and sometimes I get leg cramps. I still have symptoms, but only a few times a week compared to the 10 times a day before I started the medication. My life has almost done a complete 180!

Was this comment helpful?Yes
Comment from: GrammaAnn, 65-74 Female (Patient) Published: February 17

I wonder if anyone else Raynaud's phenomenon with has gotten white bands across the fingernails and toenails. These appear to be permanent. The doctor upped my calcium channel blocker and everything else improved significantly but the white bands are still there.

Was this comment helpful?Yes
Comment from: coldhandswarmheart, 45-54 Female (Patient) Published: May 23

I have had symptoms of Raynaud's phenomenon for many years, as do my father and his siblings. Last year I was found to have a vitamin B-12 deficiency and started having injections. After my first injection the symptoms of Raynaud's decreased dramatically.

Was this comment helpful?Yes
Comment from: termag, 45-54 Male (Caregiver) Published: April 11

My wife has been treated for Raynaud's. Her problems are only on her fingers from mid knuckle to finger tips, which is where she routinely soaks her fingers in finger nail polish remover. I mentioned my concern over her doing this because the stuff is not gentle to the skin. I read the back of the jar of this stuff and it doesn"t seem like a good thing to tender skin.

Was this comment helpful?Yes
Comment from: sissy, 45-54 Female (Patient) Published: February 20

I am 54 years old. When I was first told I had Raynaud"s phenomenon close to 7 years ago, my hands would lose blood flow only in the winter months. Now it is anytime. Sometimes my hands are numb for hours at a time.

Was this comment helpful?Yes
Comment from: peggy64, 45-54 Female (Patient) Published: January 23

I have been diagnosed with Raynaud's phenomenon 2 years ago and it affected my fingers and toes but just recently my tongue has turned white and I have tingly numb feeling just like the fingers.

Was this comment helpful?Yes
Comment from: petpater, 65-74 Female (Caregiver) Published: December 27

I have been aware of having Reynaud's since I was fourteen, but did not know what is was until I was much older (I am 68 now) and due to poor life style choices; smoking and drinking, I have PAD (peripheral artery disease) as well as CAD (coronary artery disease). I am fortunate that I haven't lost bits of myself, i.e. toes, and I wear gloves and fleece slippers everywhere. I have experienced very many episodes triggered by emotional distress; prevention is my method of dealing with the problem. I also have interstitial cystitis which may be a related autoimmune issue, though I have seen no confirmation of that.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Raynaud's Phenomenon - Treatments Question: What was your treatment for Raynaud's phenomenon?
Raynaud's Phenomenon -Symptoms Question: What symptoms have you experienced with your Raynaud's phenomenon?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors