Patient Comments: Raynaud's Phenomenon - Describe Your Experience

Please describe your experience with Raynaud's phenomenon.

Published: June 20

My lips, nose and most of my face is so cold. I live in Florida, am 51 years old, so it's actually nice when I go outside into 80 degree heat with 80% humidity. The air conditioning makes it worse. Also my hands, sometimes my feet are affected. I am told nothing can be done about this.

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Published: June 18

I'm a hairdresser, and the constant vibrating of my hair dryer, causes my wrists to tighten and get a tingling sensation in my fingers. Then I get pain in my thumbs and my hands go white, cold and dead looking. My doctor has told me I have Raynaud's phenomenon. My other symptom is that my bicep goes into a spasm and feels like a cramp.

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Published: June 18

I have had Raynaud's for a number of years. Each year my illness gets worse, and I have found it hard to cope. The doctor says it's something that I have to deal with, which is very hard. I get frost bite symptoms, and I can't walk as my bones feel crushed together. There is no help with things like heating costs etc., if you're on a low income. People just don't seem to understand. At times, I am housebound by this, even with a car I am not able to go out when I want.

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Published: June 10

I've recently been diagnosed with Raynaud's and the tip of my finger died. The Dr.'s have no clue so far and my finger is green and scary looking. I have never seen a documented case as bad as mine. So if you get symptoms o Raynaud's seek medical attention A.S.A.P.

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Published: June 09

I'm cold all the time! Winter is the hardest because we live far north and it gets below 0 a lot. I turn blue/purple in the winter and I also have rosacea, which makes me turn bright red in heat and when I exercise.

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Published: June 09

I have suffered with Raynaud's phenomenon my whole life and it's on my mind every day cause the slightest change in temperature or working with water brings it on. I'm a 20 yr old male and my hands look like a 90 yr old man which is bad for my self esteem. I have just started learning about the disease and by the sound of things there is no cure.

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Published: June 30

I like to walk my dog very early each morning (before 6 a.m. if possible). Unfortunately, I can no longer do this in wintertime. In fact, walking at any hour during the winter anymore can be an exercise in agony. This is due to my Reynaud's Phenomenon where the cold causes the blood vessels in my finger tips and the tips of my toes to clamp shut, causing me intense pain. When that happens, I must get back home ASAP as I just can't handle the pain.

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Raynaud's Phenomenon - Treatments Question: What was your treatment for Raynaud's phenomenon?
Raynaud's Phenomenon -Symptoms Question: What symptoms have you experienced with your Raynaud's phenomenon?

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