I have had Ramsay Hunt Syndrome for a little over two years now. I first had Bells Palsy with a pregnancy about 14 years ago, then with the stress of life ended up with RHS. I have seen many doctors that said to just deal with it, but my primary care prescribed Acyclovir (many say it won't help so why bother). The Acyclovir 800 mg 5 x day lessens my symptoms. I can almost tell when it is time to take another pill by the way my ear; tonsil and throat start to hurt. When I start to feel the facial numbness I know it's time to de-stress and relax for a while. Keeping my stress level low is key. Best of luck to everyone.

Three years ago I was diagnosed with Ramsey Hunt Syndrome. My eyes continues to tear constantly. My face and teeth hurt continuously. My ear and the back of my head hurt when under stress. By looking at my MRI, my neurologist could tell that my number 5 and 7 nerves were damaged. The entire left side of my face was affected. I had just turned 65 years when this happened. I know I will never be the same.

I have had Ramsay hunt syndrome for 5 weeks now and the treatment that has helped me so far has been Acyclovir 800 mg 5 x day and Prednisone 40 mg a day. I still suffer from dizziness, facial dysfunction, bad bitterness in the mouth, everything in my ear is very loud, and frequent pain behind my ear up the neck and through the head.

I had gotten shingles in my ear Ramsay hunt syndrome (RHS) when I was 27. I'm 50 years old now. My face was paralyzed, muscle, vision loss the whole bit. I went for shock and facial exercise, but still have pain in areas of my ear, head, and neck -- stress brings it on. Acupuncture helps and so does St. John's Wart -- a natural supplement for nerve pain and mood.

I was diagnosed with Ramsay hunt syndrome two years ago. Although some of the symptoms of drooping eye and mouth still appear. I too, like others, hope that I don't ever have the severe attack as I first was diagnosed. The pain was beyond belief not to mention the disfigurement that I had to experience. The shingles in ear and mouth were the most painful. After medication was given, it still took almost a year to feel somewhat normal again although I don't think I will ever be the same again.

I was diagnosed with Ramsey Hunt syndrome two years ago. Although I received the proper medical treatment, I did not get it until it had severe effect. I have lost hearing, and it attacked my cranial nerves. I had to have a gold weight put in my eye so I could close it (haven't blinked in 2 years) and I am very dizzy, so it effects my mobility. I haven't been able to work, so I ended up retiring, which has helped because the stress has been relieved. So I am in the very unusual column, so says my doctor at Yale. Hope no one else gets this unusual and awful disease.

I have had the after effects of this for 6 years. Every day I look in the mirror it is a reminder people say I look so much better but I do not think so - still have dry eye and all facial nerves on that side are gone. Have issues going to dentist. Have ribboning of my neck as well guess it could be worse - do facial exercises every day.