Patient Comments: Ramsay Hunt Syndrome - Symptoms

What were the symptoms associated with Ramsay Hunt syndrome in you or someone you know?

Comment from: Elvi, 65-74 Female (Patient) Published: June 06

I had Ramsay Hunt syndrome 2 years ago. I had terrible pain in my throat for a week. The doctor thought it was tonsillitis and gave antibiotics, no good. After a week the right side of my face was paralyzed. I was taken to the hospital and given 12 steroids a day, as well as calcium tablets and stomach liners. I lost 1 1/2 stone in 4 weeks. Steroids soon did their work and my face was better in about 2 weeks. Everything recovered except I am left permanently with vertigo and a dodgy throat. All in all very lucky to be able to carry on as normal.

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Comment from: contractor, 35-44 Male (Patient) Published: May 13

I had complete paralysis on one side of my face due to Ramsay Hunt syndrome. No taste on one side and my eye on same side will not close. I was numb, but that has gone. Taste is back and some feeling in my lips. I wonder if I can expect any more recovery.

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Comment from: japke, 55-64 Female (Caregiver) Published: March 10

I'm a Swiss doctor in Africa. Six days ago I saw a child with chickenpox and said to myself, fortunately I've had chickenpox as a child. Within days Ramsay Hunt syndrome symptoms began; irritated right ear from glasses, a small area with blisters on the right side of my neck, pain attacks in neck and right ear, and since 10 hours facial paralysis (yesterday I drove for several hours with all 4 windows open). I treat it with MMS drops.

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Comment from: Jette, 55-64 Female (Patient) Published: February 02

It is now 5 years ago since I developed Ramsay Hunt syndrome RHS). I was rushed to hospital with seizures and severe vertigo. Within 2 days I developed facial paralysis down one side of my face affecting speech, hearing, ability to eat and drink, my eye sight, and my eye would not close. Anti-viral and other medications ensured that after a week I was able to get out of bed. My hearing improved. I was not given any support other than pain killers. After 5 months I returned to work as a teacher. The ignorance of my employer (I was then disabled) meant that I was eventually unable to work and my health deteriorated to being suicidal. I had CBT (cognitive behavioral therapy), and gradually began to improve. I also paid for electro-nerve stimulation and exercises at a private clinic. Over time this has greatly improved my facial nerve. Exercise has improved my balance and confidence, and I now volunteer and make every effort to get my life back. People still question and think I have had a stroke and I tell them it is RHS. Of course they have never heard of it. Every day is still a challenge.

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Comment from: sandy, 55-64 Female (Patient) Published: October 31

I was diagnosed with Ramsay Hunt syndrome (RHS) when I was 27 and I am now 63. I had typical symptoms of blisters in my throat and facial paralysis on my right side. I was admitted to hospital with an excruciating headache and operated on to relieve the pressure on my facial nerve. I was in hospital for 2 weeks. At the time there wasn't a lot of information about the condition. I started to get a little movement in my face exactly six months later but have never fully regained the movement of the right side of my face. I hope these days there's a lot more that can be done for people who are struck with this dreadful condition.

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Comment from: Angel, 55-64 Male (Caregiver) Published: February 09

My family member had severe Ramsay Hunt syndrome.

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Comment from: TJBord, 35-44 Female (Patient) Published: October 23

I have had Ramsay Hunt syndrome for about a month now. I am starting to get more movement on the left side of my face but I am still suffering from quite a bit of ear pain and now have pain down the left side of my neck. I can't seem to get enough sleep either. I appreciate hearing everyone's stories. I feel like I don't get good prognosis from the doctors, as to how long I am going to have to live with this, so it helps hearing everyone's different situations.

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