Patient Comments: Pulmonary Hypertension - Treatments

What was the treatment for your pulmonary hypertension?

Comment from: benac54, 55-64 Female (Patient) Published: November 08

I have had pulmonary hypertension for 2 years now. Got immediate help, probably because I'm a nurse. I am 62 years old now, and was working full time 12 hour shifts when I was diagnosed. I had shortness of breath, with minor exertion, especially when walking up inclines, got frequent respiratory infections, and started have chest pain and tightness. I now go to Pulmonologist at Baylor Medical Center in Houston, and have not seen too severe an increase in my condition. I take Letaris, Revatio, Ventavis, Adactone,and Diovan for my treatments. They do all seem to be helping. I get frequent echocardiograms and see my doctor frequently. Am also in a study for Ventavis.

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Comment from: Mariaace3, 19-24 Female (Patient) Published: December 05

I have just recently found out that I have PH (pulmonary hypertension). When I was diagnosed on November 7th 2013, it was a big shocker to me. I am now learning how to cope with my heart disease, I'm at the hospital every week, cardiologist says my case is very severe and they are talking amongst other doctors in different hospitals because they don't know how I got this heart problem. I went through a lot of needles and medicines, they did X-rays, ultrasound of my heart, TTE (transthoracic echocardiogram) and cardiac catheterization which hurt terribly. Next week I'm going in for a CT scan. They have me on medication, lots of medications. My life has changed dramatically in just one month, I can't do many things now for example dancing was a passion of mine now I can't do that because I lose my breath easily.

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Comment from: susan, 45-54 Female (Caregiver) Published: March 01

I just found out I have pH I have some swelling in my legs not much shortness of breathe. I'm not on any medications yet. My doctor act like I shouldn't be concerned. I'm confused I'm on dialysis having palpitations and scared going to the doctors Tuesday hopefully they put me on medications.

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Comment from: Minnesota Mom, 35-44 Female (Patient) Published: February 08

I could barely walk 50 feet and my pulse and heart would be pounding at 110+. In 2012, I was 43 and diagnosed with pulmonary hypertension, diastolic dysfunction, and congestive heart failure all as a result of sleep apnea apparently. I currently take metoprolol, verapamil, and lisinopril with hydrochlorothiazide.

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Comment from: Jackie, 55-64 Female (Patient) Published: January 14

I was diagnosed with pulmonary hypertension in 2008 and I almost died. Soon after I had a mitral valve replacement. I have been treated for pulmonary hypertension with viagra and now I am on adcirca which is the same thing. Now I breathe so much better.

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Comment from: To young, 35-44 Female (Patient) Published: January 03

I am 35 years old. I have severe pulmonory hypertension. I was diagnosed with it in 2009. I was 32 years old. I am also on oxygen for the rest of my life. I don't have any friends now because they find out that I am on oxygen and have to carry it with me. I feel so left out. So I just stay home. I am on Tracleer, Relation, and Warfarin.

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Comment from: 25-34 Female (Patient) Published: November 29

Hi, I'm 30 years old and have been diagnosed with primary pulmonary hypertension. It's in my family. My grandmother, aunt and uncle had it. the pills I'm on help. I'm on 40 mg of Furosemide twice a day and Warfarin and Viagra 50 mg three times a day.

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