Patient Comments: Thyroid Disease - Describe Your Experience

Please describe your experience with Thyroid Disease.

Published: October 06

I am speaking for my daughter. She's 15 years old. She was diagnosed with thyroid disease The doctor referred it as toxic thyroid since her thyroxine level went down to zero. She' taking medications and the doctor had suggested for her to take radioactive iodine. Accordingly it is safe. But I still have doubt about it. She is only 15 years old. Thank you very much.

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Comment from: Diane W., 55-64 Female (Patient) Published: October 06

Last week I had my thyroid removed. I have a follow-up appointment with both my surgeon and my endocrinologist, but that is a week away. I was and still am wondering what it meant when after the surgery I was told that my thyroid was unusually small in size. My thyroid was covered in nodules and pathology will examine if they are benign or malignant. My voice is deeper and very robotic sounding. I feel like I have been through a lot these past 2 plus years. January, 2007, I had a triple by-pass. I have had low energy for months and have been very sensitive to the cold.

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Comment from: Riverview, 55-64 Female (Patient) Published: October 06

At age 48 I was diagnosed with Hashimoto's Disease, which is a form of hypothyroidism. Every time I think about this, my blood pressure goes through the roof because I had the classic symptoms for almost 10 years before any doctor thought to order a TSH test. At time of diagnosis, it came back with a reading of 160! I asked how I could even function at that level and my (new) doctor replied that, o, the body just gets used to it. My ongoing symptoms were extremely dry skin and hoarseness/laryngitis that would come and go spontaneously. One minute I could talk, the next minute I couldn't, and 10 minutes later I could talk again. And, yes, I experienced early menopause. Along the way, doctors kept asking if I were unusually tired. That was the wrong question to ask. I had jobs in which I might easily put in a 10-hour day. I didn't feel particularly tired. The fact that I was going to bed earlier and earlier I just chalked up to getting older (and getting up at 6 AM). By my mid-40s I was getting unusually cold in the evenings - even when other people in the room said the temperature was comfortable. I bought a sweater. Eventually, I had difficulty swallowing - it felt like a big apple had lodged in my throat. When I was finally diagnosed, I looked up Hashimoto's Disease on the Web and discovered that about 10% of women over the age of 40 develop this condition. So why did it take years for any of my doctors to order a lousy $40 blood test? (I had a number of doctors because I had moved several times. But nevertheless, each one heard my symptoms in detail and either wrote it off as a whiny woman complaining or viewed each symptom separately without looking at the cluster of symptoms together. You don't know the number of different dry skin creams I tried - with no relief.) The moral to the story: insist that your doctor order a TSH test as part of your annual exam regardless of your age! Additionally, don't let doctors bully you with numbers once you do get medication. Even though my TSH tests came back in the normal range after being prescribed Synthroid/Levoxyl, etc. I still didn't feel "normal" and my skin was still very dry. I read about Cytomel and was all set to argue with another new doctor to prescribe it, when he said that he always prescribes Synthroid/Levoxyl in combination with Cytomel. What a difference it has made over these past few years.

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Comment from: dmpipher, 55-64 Female (Patient) Published: August 28

I used to take Synthroid for my thyroid disease, but when I lost my medical insurance years ago, I stopped taking it. I also take high blood pressure medicine and a diuretic. My mother has Graves disease. I have recently been having tremors and muscle weakness. I also noticed that I have lost a little weight.

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Comment from: kimberley1, 45-54 Female (Patient) Published: June 08

I have such a strange story to tell. I fell down the stairs at my work. I broke my tibia and was on crutches. When I came off the crutches and started to put weight on my leg my knee started giving me a lot of pain. I went to a doctor who ordered a scan of my knee and as a result of this was scheduled for arthroscopic surgery. When they opened my knee up they discovered that it had been eaten away by these crystals. I was diagnosed with pseudo gout calcium deposition disease. They repaired the knee as best they could. I was then sent for tests for my para-thyroid because my calcium levels were very high and they needed to find out what was feeding these crystals. End result was I had to have a parathyroidectomy where both of my glands were removed. I am on coxflam and colchicine as well as arthro guard and omega oils. My recovery has been slow but I am on the mend. I was told that if I had not fallen down the stairs like I did, none of this would have been discovered.

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