Patient Comments: Psoriatic Arthritis - Diagnosis

How was your psoriatic arthritis diagnosed?

Comment from: colleen, 45-54 (Patient) Published: February 20

I was diagnosed 6 years ago after being misdiagnosed for 5 years. I now have fibromyalgia and psoriatic arthritis systemically. My physician diagnosed me in 5 minutes after looking at my rashes, hands and feet. I could not tolerate methotrexate, but have been on Enbrel. I just started on Humira but have problems with infections and some of my family who are not supportive.

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Comment from: barbara h., 35-44 Female (Patient) Published: October 27

I have difficulty coping with stress, a situation recently got out of control and I left my husband to then take charge over it. Soon, I had noticed purplish blue circular bruises covering both my arms, top to wrists! Within hours, they were turning bright red with a yellowish center! There were so many and diff sizes too. By 4 days, all were gone! My sister saw them, she's a cardiac trauma registered nurse, tried telling me I was about to go into myocardial infarction and get to the emergency room! Though fearful, I did not. I cannot find what had happened.

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Comment from: Ginger, 55-64 Female (Patient) Published: June 10

I was diagnosed with psoriatic arthritis about 2 years ago. I never knew I had psoriasis until I read that the disease can be as mild as to appear in the belly button only. No one in my family has psoriasis, but we do have eczema. Now, I have widespread joint involvement. I have just developed some nail separation in a few nails. I just changed from Humira to Enbrel, and am waiting for improvement. Up until this point, I was leery about this diagnosis. Not a lot of swelling, but a whole lot of pain. I think doctors (and people, too) equate lack of swelling to lack of pain.

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Comment from: Gould88, 35-44 Female (Patient) Published: November 27

I am a 44 years old RN (registered nurse), practicing for 25 years. I have had flares of mild to moderate scalp psoriasis since age 9. At age 12, I had debilitating pain in my knees and could barely walk for a few weeks. The doctor diagnosed me as "needy" - implied that I "over-exaggerated" my pain, and told my parents to spend more quality time with me. Frequent asthma attacks and bouts of severe pleurisy would put me on steroid treatment - and pain always got better. I've exercised since I was 13 just because I noticed how much better I felt when I did. Approximately 2 years ago, knees became severe, couldn't continue with running or walking for any length of time, I have put all energy since then into making it through 2, 12 hour shifts at hospital a week, then I have to rest. I have progressive fatigue- the doctors said it was stress and I'm "that age." Elbows are hurting now, hips hurting bilateral, and 6 weeks ago I "hurt" my back helping a patient. MRI showed significant spondylitis/sacroiliitis of lower spine. Progress of recovery has been slow! Out of desperation, feeling that I was being "over-reactive" to pain and maybe I was depressed, I started researching and trying to put the pieces of the puzzle together. I came across psoriasis foundation website, and saw nail changes that looked just like mine! I looked further and realized, I am legitimately hurting! I am not crazy! I am not needy! I have psoriatic arthritis! I discussed my revelation with the doctor this morning and he agrees; and I see a rheumatologist in 2 weeks. I'm a little scared about future, but also hopeful that at least now I'm validated after all these years.

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Comment from:, 35-44 Female (Patient) Published: January 19

I was first diagnosed with P/A at the age of sixteen when I had a bad fall in the winter. Then after I was bedridden for eighteen months, I was told by the doctor I may never walk again, but I wasn't giving up that easy. I'm very stubborn. After many injections, pills, and therapy I was back on my feet. I am now thirty five and it is gotten more severe. I've never wanted to accept my fate and in some ways I still don't want to accept that I have to live with this forever. Any information I can get about this will help me. And any support from other's who live with P/A may help me get out of having the blue's. It's very hard to explain or talk to other's who don't know what you're going through.

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Psoriatic Arthritis - Describe Your Experience Question: Please describe your experience with psoriatic arthritis.
Psoriatic Arthritis - Treatment Question: What was the treatment for your psoriatic arthritis?
Psoriatic Arthritis - Symptoms and Signs Question: What are your psoriatic arthritis symptoms and signs?
Psoriatic Arthritis - Diet Question: Have particular dietary changes helped your psoriatic arthritis symptoms and signs?

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