Patient Comments: Psoriatic Arthritis - Describe Your Experience

Please describe your experience with psoriatic arthritis.

Comment from: Denise, 55-64 Female (Patient) Published: November 24

I am a 58 year old woman and do not have a rash, but I do feel bumps on my skin and I am always very itchy. I have had issues on the left side of my body, specifically very bad lower back pain which has been diagnosed as dysfunctional SI (sacroiliac joint). I also have bad shoulder pain which causes shooting pain down my arm. Both of these symptoms are on the left side. One year ago, I lost the hearing in my left ear, sudden sensorineural hearing loss (SSHL). I have wondered if all of this is related. I wonder if this could be psoriatic arthritis.

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Comment from: mel, 75 or over Male (Patient) Published: February 24

I have had psoriatic arthritis for years. I took gold shots and was in remission for 30 years, and 3 years after stopping the shots.

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Comment from: Busygirl, 45-54 Female (Patient) Published: October 14

I've had psoriasis since I was 5 years old, on my knees, elbows, and scalp. Then last year I developed a painful shoulder that was diagnosed as frozen shoulder. Six months ago my feet started burning at night and would keep me awake at night. I went to my general physician who referred me to a rheumatologist, who after a month of testing, announced I have PSA and was HLA B27 positive. I was started on Remicade 8 weeks ago and have had zero relief. The pain is now in my hands, wrists, feet, ankles, Achilles tendons and cervical spine. The only other med I take is Motrin as nothing else seems to work and the tramadol made me itch like crazy. I have to keep moving all the time in order to not freeze up.

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Comment from: Rhonda j, 35-44 Female (Patient) Published: May 30

I always had a bad scalp and crusty stuff behind my ears. At the age of 23 I got strep throat and had a full body outbreak of psoriasis. My brother had this 6 years before me after a spider bite. At the age of 34 I started falling apart. I painted my pre-kindergarten classroom and the next day I could barely walk. Gabapentin and meloxicam were prescribed. It got a little better, then my jaw started hurting real bad, along with my feet. Eventually my hip joined in; then my fingers and my fingernails started separating from my nail bed. With all of the hurting I blamed it on age and maybe depression - remember "depression hurts - Cymbalta can help?" Well, I tried Cymbalta and no, it didn"t help. I went to another family practitioner and he did blood work and confirmed that it is psoriatic arthritis. I thought finally I know that it"s not in my head - there is something wrong. My inflammation level was double what it should be. After being on Humira and methotrexate, and hydrocodone which I only take when it"s unbearable, it worked for about 3 months but here I am with the hurting worse than what it ever was. Now I am back at square one but even worse and I went to my rheumatologist today, and nope, no magic cure.

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Comment from: KC, 35-44 Female (Patient) Published: May 21

My psoriatic arthritis started at age 42 with a rash behind my ears, followed by one swollen finger. Weird! Then another finger, with pain always worse in the morning. This went on for months. One day I woke up, and it was in my right jaw. That"s when I got scared because I couldn"t open my mouth to get a toothbrush in there! I went to a rheumatologist, and was started on methotrexate but couldn"t handle the side effects. I"ve been on Humira now for 6 weeks, and the improvement was dramatic and life-changing. I now realize just how exhausted I really was from this disease. I didn"t even know how bad I felt until I felt better. I estimate that I was gradually getting sick for 2 years, in retrospect. I started exercising again after 2 years, and eating lots of fruits and vegetables. I am back to my old self, healthy and active, lots of energy, amazing!

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Comment from: GET ACTIVE, 45-54 Male (Patient) Published: January 30

I was diagnosed with psoriatic arthritis 5 years ago after countless referrals to doctors for knee problems, joint pain, fatigue, etc. You need to advocate for yourself you know your body best. After being sent to a knee specialist, the OT (occupational therapist) said she thought it was a good idea for me to go to the "Arthritis Society" and see another OT. She saved my life and hooked me up with a proper doctor. The self-administered needles and medications that I took mad me sick for 4 years but held my pain and inflammation at bay, which I was grateful for. It enabled me to get active! Three months ago I was introduced to "Melt Method" and my life has yet had another crossroads. I have been needle free for 3 months with no more pain or inflammation than when I was on my methotrexate and V12. I still take my Apo-Naproxen. It has been a long painful journey from the pain of the disease to working though pain at the gym doing Pilates, weights, and toning. If you have psoriatic arthritis bottom line is, it is going to hurt! You must work though that and be active every day. It gets easier. I went from not being able to sleep, do my job properly, chronic pain, to cross-country skiing, Pilates, and doing tai chi, I am 51 years old now and live with less pain which is gradually dissipating. It may hurt to get active, but trust me it will hurt even more if you are not! Good luck with your journey.

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Psoriatic Arthritis - Diagnosis Question: How was your psoriatic arthritis diagnosed?
Psoriatic Arthritis - Treatment Question: What was the treatment for your psoriatic arthritis?
Psoriatic Arthritis - Symptoms and Signs Question: What are your psoriatic arthritis symptoms and signs?
Psoriatic Arthritis - Diet Question: Have particular dietary changes helped your psoriatic arthritis symptoms and signs?

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