Patient Comments: Primary Biliary Cirrhosis - Personal Experience

Do you or someone you know have PBC? Please share your experience.

Comment from: Judy, 65-74 Female (Patient) Published: March 20

I was diagnosed in 2005 with PBC after a routine blood test. I had been having nausea. I went on ursodiol 300mg 3 tablets twice a day plus Flaxseed 2000mg 2 cap twice a day. I feel normal except for leg weakness, constipation, a feeling of fullness in right upper abdomen occasionally. I have no dry mouth or eyes or skin concerns yet! It"s been 8 years and now I"m concerned as to what is next for me.

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Comment from: Brandon2013, 25-34 Male (Patient) Published: August 20

I was recently diagnosed with PBC. I am told I am stage 4. My symptoms were, darkened urine with thickness to it, dry eyes, dry mouth, severe fatigue, abdominal pain, and excessive itching. But what got the ball rolling on finding out what it was, was the excessive weight loss to 160 lbs in 11 months and still dropping. My blood Work showed elevated everything. The biopsy showed progressive cirrhosis and granulomas.

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Comment from: sam, 65-74 Female (Patient) Published: August 06

I was diagnosed with PBC after a routine blood test many years ago. I have been lucky because I had very few problems for many years except for dry eyes and mouth and joint aches. I am now 73 and have most of the symptoms especially the fatigue and tiredness. I take URSO four times a day and have 6 monthly ultra sound and blood tests. I have joined the PBC Foundation on line from whom I was sent a information file which was very helpful.

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Comment from: one-in ten, 65-74 Male (Patient) Published: July 09

I was diagnosed with primary biliary cirrhosis (PBC) in early 2004. I also have type 2 diabetes and low thyroid hormone levels. I was dreadfully tired and achy all the time. I had itching all over. I also suffered from dry mouth, poor short term memory, and difficulty speaking. I now take rifampicin which has greatly helped relieve my itching. I had a minor heart attack several months ago when I had inflammation in the sac around my heart.

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Patient Comments

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Primary Biliary Cirrhosis - Experience Question: Please share your experience with PBC.
Primary Biliary Cirrhosis - Symptoms Question: What symptoms did you experience with PBC?
Primary Biliary Cirrhosis - Diagnosis Question: Please share your experience with the diagnosis of PBC.
Primary Biliary Cirrhosis - Complications Question: What complications have you experienced with PBC?

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