Patient Comments: Primary Biliary Cirrhosis - DiagnosisHow was your primary biliary cirrhosis diagnosed?
Comment from: Mimi, 45-54 Female (Patient)
Published: January 18
My primary biliary cirrhosis was diagnosed through routine blood tests and a liver biopsy. Was this comment helpful?Yes
Comment from: DeAnne, 45-54 Female (Patient)
Published: May 09
I am a 46 year old female. I was diagnosed a year and a half ago. My doctor was watching my liver function for about 2 years, and then sent me for a liver biopsy. I had pbc. It was then confirmed by a blood test. I take 500 mg of unsocial twice a day. My liver function is now normal. Was this comment helpful?Yes
Comment from: LDM1960, 45-54 Female (Patient)
Published: April 18
I am a 51 year old female, who has never had health issues. A routine blood work up showed high liver enzymes. Further blood work showed I had Lyme Disease. I was treated for that for three weeks with antibiotics. Aside from fatigue, I had no serious symptoms. My levels began to go down, but my doctor referred me to a gastroenterologist. That turned into further blood work, and a liver biopsy. Today I was told I have primary biliary cirrhosis. I am in utter shock and scared. My Doctor totally frightened me by saying I may need a liver transplant. Was this comment helpful?Yes
Comment from: katw, 45-54 Female (Patient)
Published: March 15
I had a c scan on my lungs after shortness of breath, flu like symptoms. (early 2011) Was told I needed to have follow up on my liver because it looked large and swollen. Blood labs, more scans and then biopsy confirmed I have stage 1 PBC. I have lots of joint pain, exhaustion, and itching. I am on Actigall 900 mg daily, Also Cymbalta for depression. Was this comment helpful?Yes
Comment from: halo, 35-44 Female (Patient)
Published: January 27
I am so glad I found this site it is hard talking to people about this disease when they have no idea what you are going through. The worst part for me is the pain. Hard to get going in the mourning's that is when it is the worst. I'm 37 and was just diagnosed 2 months ago still find it hard to believe I have this. Good luck to all of you and god bless. Was this comment helpful?Yes
Comment from: Tracy from Ontario, 45-54 Female (Patient)
Published: June 22
I was diagnosed with primary biliary cirrhosis (PBC) 8 years ago after I had my gallbladder removed as stones were suspected for severe abdominal pain. My liver enzymes were still high so a biopsy was performed. I have been taking 750 mg Urso daily and until recently experienced no symptoms. The last year I have had rheumatoid arthristis symptoms with no definite diagnosis. My immune system is wreaking havoc with my body. Recently I have been experiencing moderate itching mainly legs and arms. I am worried that the itching will get unbearable. Was this comment helpful?Yes
Comment from: WandaH, 45-54 Female (Patient)
Published: June 03
Went to my GP in mid-March 2011 for bronchitis. Told him I'd been losing weight and had a bad taste in my mouth for several months. Consequently, blood work was done. The nurse called me the next day saying that my liver panels were high. Scheduled me for an abdominal ultrasound the following day and then back to the doctor that afternoon for results. Scary, them moving me through so fast! Had my gallbladder out on March 31, 2011. A month and a half later (mid-May 2011), liver panels were still high, so I went to a gastro. Did more blood work. Doctor called me with results last week at night confirming primary biliary cirrhosis (PBS). You know it's serious when the doctor himself calls you AT NIGHT!?!? Started meds the very next day. Still unsure about all of this....and scared.... Never had any health issues prior to this. Was this comment helpful?Yes
Patient CommentsViewers share their comments
Primary Biliary Cirrhosis - Symptoms
Question: Please describe the symptoms of your primary biliary cirrhosis.
Primary Biliary Cirrhosis - Experience
Question: Please describe your experience with PBC?
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My PBC was diagnosed during my yearly physical and blood work. An ultrasound, a multitude of blood tests and a liver biopsy as well as two CAT scans confirmed I have an overlap of PBC and immune hepatitis. I have a great doctor and he is following up with all the tests needed, and I feel great.