Patient Comments: Pernicious Anemia - SymptomsThe symptoms of pernicious anemia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Comment from: MightyWeak, 35-44 Female (Patient)
Published: August 25
I am 44 years old and have just been diagnosed with pernicious anemia. My B12 level was at the bottom of the barrel on the chart on my blood test. My symptoms began vaguely but then quickly got worse as time went on. I am extremely fatigued and my muscles hurt. I have heart palpitations and shortness of breath easily. Mental confusion is a huge symptom for me. I have begun taking B12 injections one time per week. I'm on my third day with it, and I am beginning to see a slight improvement. Thank goodness! Was this comment helpful?Yes
Published: August 25
I was diagnosed with pernicious anemia about five years ago. I was frequently treated for an iron deficiency before I was diagnosed. My symptoms started several years before my diagnosis. I had severe memory loss by age 26. I had tingling in my hands and feet. I had loss of pigmentation, confusion, tiredness, and personality changes. I had frequent visits to my physician and neurologists with no success. Eventually, a rookie doctor checked my B12 levels and found them to be extremely low. So, I was started on B12 shots immediately. It took a while for most symptoms to decrease. I still have memory loss with significant bouts of confusion. The tingling in my hands and feet has subsided. I've lost interest in eating meat, including fish. I am now a vegetarian. Was this comment helpful?Yes
Published: June 24
I have just been diagnosed with pernicious anemia. The reason I saw a neurologist was due to a complaint of a "constant large burp" in my back. The neurologist took certain blood tests following my comments of "I feel like I am sliding." I did not feel dizzy. I had slight tingling of my left hand and foot and was often dropping things. These symptoms I attributed to using the left side more than the right while recovering from right shoulder surgery. I did note feeling tired, even though I had a good night sleep and often fell asleep while reading a book. I also noted a slight change in diet preference - my appetite for beef disappeared as did my desire for certain fishes. My continual desire for fruits and vegetables did not change and I often felt better (for a bit) after eating a salad. Was this comment helpful?Yes
Comment from: jayneb, 35-44 Female (Patient)
Published: April 17
I was diagnosed three years ago after suffering severe exhaustion and confusion and just didn't feel right. I had lots of injections over 12 months and then was informed my levels where too high. I now have had eight blood tests and was diagnosed with anemia. Then, after a change in diet, I was told that I'm OK. I am going to the doctor again to get tested, and to point out my fears. I don't believe I have been diagnosed correctly. Was this comment helpful?Yes
Comment from: SLW, 45-54
Published: March 21
I started with bilateral numbness in both legs. It progressed up to my belly button. I also had extreme fatigue. By lunch time at work, it was hard to lift my legs to get into my car. When I got home, I'd got to bed in the evening at 7, which is four hours earlier than my normal time. My husband wondered what was wrong with me. It was extremely frustrating for me at work as well as at home. Good luck to anyone who gets this disease. Was this comment helpful?Yes
Comment from: 55-64 (Patient)
Published: August 28
At age 55, I was recently diagnosed with pernicious anemia. I too, was fatigued, off balance at times walking, sick a lot with flu symptoms, etc. I now give myself vitamin B-12 shots once a week. It was discovered through blood work that I was very low in vitamin B-12. I eat healthier, exercise a couple of times a week and feel somewhat better. Was this comment helpful?Yes
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I started having severe abdominal cramping two nights ago and which was preceded by constipation for two days. When I woke up the following more of the beginning of the cramping I felt OK, but then by the afternoon I ate lunch and started having severe diarrhea. Now the cramping has been going on for two days and I can't keep anything in my stomach. I have been diagnosed with IBS in the past along with anemia, but with my IBS I don't normally have the cramping.