Patient Comments: Pernicious Anemia - Share Your Experience

What was the cause of your megaloblastic (pernicious) anemia? Please share your experience.

Comment from: Val, 75 or over Female (Patient) Published: September 06

I believe I had symptoms of B12 anemia since I was in my mid twenties; frequent bowel movements, anemia whenever I was pregnant, and spider vein when pregnant or during periods later on. In my forties I became progressively weaker but when I had a blood test all areas were perfect. The doctor told me they had lost my hemoglobin count. I think he didn't want to believe it was so low. A couple of years later, the Gynecologist said my blood count was 7 and prescribed iron pills. Friends at the YMCA gym classes told me about ALLBC=800 which I began taking. It helped but did not cure my problems, but I think it may have saved my life. It at least kept me alive until I switched doctors and when I went in to see him, so ill that I carried a bucket in the car for vomiting, when my neighbor drove me, I told him about the blood count of seven and he immediately initiated all the right blood tests and called me at home and sadly told me that I had B12 anemia. I was glad to know what I had because at least I could do something about it. I had also figured out that I have severe lactose intolerance and I had been hospitalized for Crohn's disease 4 times since my youngest child was born. It turns out I do not have Crohn's, but Meckel's Diverticula with a stone in it. All three conditions have the same symptoms so I was in really bad shape but nevertheless kept forcing myself to keep going. I now take B12 shots every other day. I believe that most people with B12 anemia do not take enough injections. It has improved my blood count to around 12 and minimized other symptoms such as weakness, numbness and muscle cramps in legs. Diarrhea, which used to be a terrible problem, is far less frequent now.

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Comment from: coosaw, 45-54 Female (Caregiver) Published: August 23

This is the result of stomach reduction surgery. She can't walk, even falls with walker. Can't even turn over, in intense pain. Is there any hope? She is getting B-12 by nose spray and on pain meds that don't stop the leg and back pain.

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Comment from: Debs, 35-44 Female (Patient) Published: June 25

About six years ago a was having problems getting pregnant. my doctor done some blood test and after a week he told me a had pernicious anemia. A had injection every week then every mouth then three months. then became pregnant and now a have two wee boys A have had these injection now for five years and a always no when a need them .a get tired and my finger get numb and sometimes tingly the pain around my hips and down my legs can get really bad after five years thinking that a was doing ok and just found out a have Graves' disease. Have been told it been brought on by stress as my mum is very ill.

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Comment from: Living with PA, 35-44 Female (Patient) Published: May 06

I was told I had pernicious anemia 10 years ago after a miscarriage. I needed B12 injections. After a couple of injections I had severe acne, so I stopped the injections. I was never told I had to have them for life or that I had PA. After five years I had severe fatigue, aching hips and muscles, memory loss and difficulty finding words to tell a story, lightheadedness, and felt off balance. A new doctor diagnosed me with PA after I gave blood and did not recover. I have had regular injections for more than a year now. I still get a few pimples now and then (I never had pimples as a teenager). I know when I am due for a shot because my fatigue returns and I often need a nap.

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Pernicious Anemia - Symptoms Question: The symptoms of pernicious anemia can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Pernicious Anemia - Treatments Question: What was the effective treatment for you pernicious anemia?
Pernicious Anemia - Causes Question: Was there an underlying condition that caused your pernicious anemia?

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