Patient Comments: Peripheral Neuropathy - Symptoms

What were the symptoms of your peripheral neuropathy?

Comment from: Marci02, 55-64 Female (Patient) Published: January 06

My husband received his very first flu and pneumonia shot in November 2014. He became very sick to his stomach in December. He was sick for a full 7 days, out of work, had vomiting and diarrhea, and was weak. He went to the doctor, who said he has had a virus, and that he should improve. By March 2015 he still wasn't well. April 8th he had so much pain in his limbs that he was crying and went to Urgent Care where his lipase levels were elevated. He was admitted to the hospital for 4 days. He could not walk on his own in the hospital where his doctor told him he was anxious and that he would address his neurological issues at a later date. It was downhill from there, unable to walk, pain in extremities paralysis in the feet, legs and around the mouth, with eyelid droop. Still no answers and no concerned doctor. I fired the doctor, got him into physical therapy and found a new care provider that sent him to a neurologist who did a thorough work up and finally had a diagnosis of Guillain-Barre on Aug 8, 2015! What a nightmare. He continues to suffer with polyneuropathy and is always in pain.

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Comment from: JCKC, 65-74 Male (Patient) Published: December 29

I had been on an antibiotic for dental work shortly before I began experiencing severe cramping and bloody diarrhea. Tests for C. difficile came back negative and after losing 10 lb. in two weeks and given several IVs in the doctor's office, I was referred to a gastroenterologist. After a colonoscopy, I was diagnosed with ulcerative colitis. I am on two medications (one permanently). My cramping and diarrhea have cleared up and I am starting to taper off the steroid I was prescribed. I had been in excellent health prior to this and because I don't know what caused the initial flare up, am always scared that it will happen again. Good luck to all that are struggling with colitis.

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Comment from: Steve McC, 55-64 Male (Patient) Published: November 11

I have diabetic peripheral neuropathy. I am 64 and have been suffering with diabetes type 2 for 20 years, and over the last 8 years I have developed neuropathy. I am very weak in the legs and cannot stand up if I fall down. I also am very clumsy, losing control over bowel movements, and have difficulty swallowing, burning pain in the thighs, and numbness in the feet. I found that 800 mg of alpha-lipoic acid a day really helps with leg weakness and I no longer use a walking stick. I still cannot stand up if I fall over, but I can navigate small steps without a handrail without falling over or overbalancing.

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Comment from: sarah1938, 75 or over Female (Patient) Published: August 13

I was diagnosed with peripheral neuropathy about 6 weeks ago. My only pain was in my knee. I have since seen an orthopedic surgeon who diagnosed me with osteoarthritis in my knee. After a cortisone shot my knee pain is gone. I don't doubt that I do have peripheral neuropathy however I have gained 5 lb. since being on gabapentin and don't feel any different. Of course my only pain was in my knee. I will be talking to my neurologist about the gabapentin.

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Comment from: noone, 35-44 Female (Patient) Published: April 16

I have peripheral neuropathy, with burning feet and calves, tingling, numbness, and shooting pains in fingers and toes. I was diagnosed with Lyme disease. I am only 37 years old. It started almost 3 years ago. Face also tingles. Right arm has gone numb already. I have terrible headaches, blurred vision, panic, and anxiety. Life is awful. I just want to stay home all the time. No joy, and no purpose.

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Comment from: paul, 35-44 Male (Patient) Published: December 22

I have peripheral neuropathy now for over 2 years in both feet and toes. I am on maximum dose of gabapentin, 300 mg 9 tablets per day plus tramadol. I use capsaicin cream 3 times a day which does help but walking is very painful. I have gained massive weight with the drugs I take. I did have carpal tunnel syndrome in my hands but had an injection which did help.

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