Patient Comments: Peripheral Neuropathy - Symptoms

What were the symptoms of your peripheral neuropathy?

Comment from: Littlebird64, 65-74 Female (Patient) Published: August 01

I have peripheral neuropathy (PN) for about 1 year now. The doctors did not know how to treat it. I recently found a doctor that specializes in PN. He called it sympathetic nerve damage; my big toe sticks out and acts like an antenna. I go in to him today for a nerves block in my spine. Lately my back has been seriously hurting so I hope it helps my feet. This doctor seems to know he is in a pain clinic. I've tried all the usual gabapentin, Lycra, all nothing; he is my last hope. I can't live like this anymore. I have a long life to live.

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Comment from: Karol, 65-74 Female (Patient) Published: May 30

I suffer from peripheral neuropathy in both feet and numbness in my calves of my legs. I am now experiencing numbness in my face. Pain is really getting to me. I find temporary relief from putting my feet into a pan of very cold water and also using Bengay zero degrees then put feet on a rice bag from freezer. Seems that the cold acts as an anesthesia.

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Comment from: Sarah25, 25-34 Female (Patient) Published: May 22

I have been a type one diabetic for almost 16 years. The pain is unbearable from my neuropathy. I was diagnosed 5 years ago. I"ve seen so many doctors I have lost count and been on every medication possible. I am still very young so I worry more than you can imagine. Doctors do not listen and the disease has ruined my social life. No one understands what my body goes through. I am getting put on a kidney transplant list. I have many other medical issues. I wish just one doctor would help. I have no energy and no motivation and am about to give up. I feel for anyone with this issue. It ruins lives. It"s not that I"m in pain because I"m depressed because I'm in pain.

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Comment from: tiwari, 65-74 Male (Patient) Published: January 30

I am suffering from poly neuropathy from last one year on my one leg and one hand. I have no pain in any of these areas. But I am not able to walk properly. My balance is also lost. Doctors have prescribed me nothing as such for that.

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Comment from: Thomas, 75 or over Male (Patient) Published: November 01

My PN (peripheral neuropathy) started in one foot 15 years ago. Since then I have had spinal stenosis surgery and follow up scarring surgery. All along my neuropathy was getting worse. I take tramadol for the pain, it helps. It has worked its way up my legs and now onto my arms and hands. I had the electric stimulator put in my back but it has actually amped up my symptoms. The sensation on the bottom of my feet, like I am walking on balloons, along with balance problems, add up to constant fall possibilities. Family and friends don't understand that this condition in many ways, takes hold of your life and you are harder to live with.

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Comment from: foilqueen3, 35-44 Female (Patient) Published: May 29

I have all the usual pain, numbness, tingling, my foot falls off the gas pedal of the car, but the most disturbing is the electric shocks that are keeping me up. I am now trying Topamax and it is ruining my life by making me drowsy same as the gabapentin and Lycra had. I've tried Cymbalta gave me tremors. No relief! The shocks are driving me insane.

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Comment from: bs0mem, 45-54 Male (Patient) Published: February 13

I was just recently diagnosed with peripheral neuropathy my pain started in my left arm i got numb and started having trouble holding onto things and the pain was at times unbearable, I then began to feel a sharp pain that started in my knee and went both directions up to my hip and down to my toes, the pain then began to start in my right arm and that made everyday life very hard for several days, the pain has since left my legs and right arm and has concentrated itself in only my left arm. I also feel all kinds of different sensations from burning, like a flushing pain that you would feel in your face from niacin, if anyone has experienced that would understand. Or the pain is a tingling sensation like thousands of sharp pins. Now it's mostly just a constant pain that does not go away, my left arm hurts all the time. My doctor prescribed me neurotin 300 mg once a day at bedtime, and it does nothing, but keep me up all night and make me even more depressed. I also get a severe pain in my abdomen which my GI doctor has diagnosed as neuropathy as well. I am currently on oxycontins 10 mg and neither of these meds are helping, in fact I hardly take the morphine at all now. Everything you read now states there is no cure for this condition and many times my wife and children just don't understand why I am so irritated and angry. You know I just want to feel some hope, period.

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