Patient Comments: Peripheral Neuropathy - Experience

Please describe your experience with peripheral neuropathy.

Comment from: little bird64, 65-74 Female (Patient) Published: July 31

I've only had peripheral neuropathy severely for a year but it's getting worse. It is traveling on to my back. The great news is I found a doctor that does nerve block. My feet are so cold and feel like walking on foam and toes feel like there's barbed wire between them. My big toe sticks out like a pointer, my daughter calls it my antenna. The doctor calls it sympathetic nerve damage. Mine was caused by too many Percocet, the previous doctor did not know how to treat it so just gave me pain killers. I am not diabetic, they tried all medications like gabapentin and Lycra. They didn't even touch the pain; I can't even wear my beautiful shoes. Luckily I found this pain management doctor that deals with pain so I go in for my 1st treatment in 2 days hoping he is my life saver to get back my quality of life; I still have a life to live.

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Comment from: Anna, 55-64 Female (Patient) Published: July 28

I was diagnosed over a year ago with peripheral neuropathy. I was put on 25 mg Lyrica and the dose was increased to 300 mg over time but the cost is so ridiculous that I had to fight my insurance to pay for it. I backed it down to 100 mg a day now because I don't care for all the side effects. I have used traditional doctors, chiropractor, acupuncture, zone therapy and nothing is helping. It is getting worse. I just saw a new chiropractor that wants to see me 3 times a week for 12 weeks to start with and then reassess me and continue treatment, for a cost of $6500. I am so discouraged because I thought I was onto the answer. Back to the drawing board for me. I empathize with all who suffer like me.

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Comment from: J.J., 65-74 (Patient) Published: July 07

I have damage to my spinal cord in two areas; cervical due to bone spurs and spinal stenosis in my lower back. This past year peripheral neuropathy symptoms have been unbearable. I take, under a doctor's care, gabapentin and tramadol. It helps if I take it several times a day, but I detest taking drugs. I don't know what to do. I take steroid injections in my spine every three months, and that allows me to be able to walk without a walker or cane, but it does not help the neuropathy.

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Comment from: Stephanie, 45-54 (Patient) Published: March 19

I have had idiopathic neuropathy for 9 years (starting when I was 35). The burning in my feet and legs feels like I am being burned alive. I have tried everything available, natural and prescribed, without much help. I can no longer work, shower for very long, exercise, or walk more than a few steps at a time. The doctors have given up trying to help me. The chronic pain rules my life.

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Comment from: joan, 65-74 Female (Patient) Published: January 23

I have nerve damage in both feet, the pain and numbness are bad enough but I can't stand the stiffness. It started right after I retired a year ago. It seems better when I'm walking. I remember I had a ruptured disc years ago, thought maybe that could have caused it. Neurontin is no help.

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Comment from: HAMMER, 75 or over Male (Patient) Published: January 17

I have peripheral neuropathy in both feet and both legs. I had a nerve conduction test that verified it as nerve damage. My doctor prescribed Lyrica 300mg, 100mg three times a day. It works pretty well during the day, but when I lay down in bed at night I have excruciating pain in my toes and balls of my feet. I am not able to sleep. Each Lyrica dose lasts for about four to five hours, so it's not enough to last all day. My doctor prescribed hydrocodone once a day at night to help me sleep and ease the pain. I was advised by a friend who is a pharmacist to ask my doctor if I can take Nucynta 100mg three times a day as it might work better than the Lyrica. I haven't done this yet.

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Comment from: Hope, 45-54 Female (Patient) Published: October 31

I have symmetrical neuropathy and abnormal nerve conduction in both legs. I had pain in my back , hips, groin area, and knees and elbows. I had pain in my legs and feet, fatigue and depression. I had on omeprazole or ranitidine for GERD. I had anemia last year, after three neurologists saying I had nothing. I took it to research by myself. I found out that all this neuropsychiatric symptoms can be brought up by b12 deficiency. I had myself tested and even after having had massive oral doses my B12 count was low. I am presently receiving shots and showing hopeful improvement.

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