Patient Comments: Peripheral Neuropathy - Experience

Please describe your experience with peripheral neuropathy.

Comment from: Bill, 75 or over Male (Patient) Published: November 18

I was diagnosed with multiple myeloma cancer in October 2012. I underwent chemotherapy treatment (Velcade) for approximately 5 months. I have what has been diagnosed as CIPN (chemotherapy induced peripheral neuropathy). I have tried several different treatments of which none has seemed to help except maybe acupuncture.

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Comment from: Cyndi, 45-54 Female (Patient) Published: August 08

I noticed the feet pain 5 years ago and thought it was just from being on my feet too much. The pain got so bad i couldn't walk bare foot and it was painful to even take a shower. When I lay down at night the pain and cold freezing stabbing feeling keep me up for hours. I tried nerve blockers, medications, and surgery. Surgery seemed to make it worse and now i am so frustrated. I'm tired of the severe pain and don't want to keep taking narcotics. Don't know what to do.

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Comment from: tg1, 55-64 Male (Patient) Published: August 08

To Marvelousone. I have symptoms similar to yours. I am doing fairly well on a regimen of Tramadol, Neurontin, and Metanx. I also use Lidocaine patches occasionally for the burning feeling when I am off my feet. Hope this helps

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Comment from: marvelousme50, 35-44 Female (Patient) Published: August 01

I have terrible burning pain in my feet and legs after walking on them or just for no reason. The burning and stinging pain keeps me awake and I cannot get relief from it. I am sure it is peripheral neuropathy. I think I am pre-diabetic because sometimes my sugars go over 200 after I eat. Plus the last A1C test I took I was at 5.9 and 6 is pre-diabetic. I have not taken another test since then and it has been over a year or longer. I take Neurontin for the burning pain and it helps some I think but not enough. I also tried Lidocaine and I think it helped somewhat. Has anyone tried Neurontin, Lidocaine, or any other medications that have helped you to get relief from peripheral neuropathy? Has anyone tried any natural remedies or any remedies to help lessen or cure peripheral neuropathy? Any advice or suggestions would be greatly appreciated!! Thanks so very much!!

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Comment from: Spec954, 45-54 Male (Patient) Published: May 31

I just had a punch biopsy which the results came back saying that the peripheral neuropathy has damaged the nerve endings all over my body. I have taken Cymbalta, Neurontin, Lyrica, and have also had many shots in the legs, back and neck and nothing works. I work 40 hours a week and I am on my feet all the time. I wonder if going on disability would be a better fit for me. I am 52 and have had this problem for years.

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Comment from: Goshen, 7-12 Male (Caregiver) Published: May 03

Peripheral neuropathy can also be caused by mosquitoes carrying the West Nile Virus. My son was bitten when he was 7 and has demyelinating polyneuropathy.

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Comment from: Guy52, 45-54 Male (Patient) Published: May 01

I have had PN for over a decade. Cymbalta handles 50 percent of the burning (knees down) and hydrocodone/oxycodone handles most of the remaining burning and cuts the Voodoo doll lightning strikes in half. As I have built up a resistance to opioids, I've had to experiment even more for relief. I have found that using the Preparation H Wipes on a burning area gives about 15 to 20 minutes of relief. It's good to know when breakthrough burning is making you want to scream.

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Published: July 16

I have peripheral neuropathy and have been taking Lyrica (75 mg, three times a day) for three years. I am always tired and depressed because it is not going away. It is most prevalent in the months when I have to wear closed shoes. My family does not understand the pain and anxiety I go through every day. They cannot see it, so they don't believe it. I am currently going to a chiropractor and am hoping that he will align my spine and neck to bring me back to what I was before. He uses manual adjustments with the neck and spine.

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Peripheral Neuropathy - Symptoms Question: What were the symptoms of your peripheral neuropathy?

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