Patient Comments: Peripheral Neuropathy - Experience

Please describe your experience with peripheral neuropathy.

Comment from: tg1, 55-64 Male (Patient) Published: August 08

To Marvelousone. I have symptoms similar to yours. I am doing fairly well on a regimen of Tramadol, Neurontin, and Metanx. I also use Lidocaine patches occasionally for the burning feeling when I am off my feet. Hope this helps

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Comment from: marvelousme50, 35-44 Female (Patient) Published: August 01

I have terrible burning pain in my feet and legs after walking on them or just for no reason. The burning and stinging pain keeps me awake and I cannot get relief from it. I am sure it is peripheral neuropathy. I think I am pre-diabetic because sometimes my sugars go over 200 after I eat. Plus the last A1C test I took I was at 5.9 and 6 is pre-diabetic. I have not taken another test since then and it has been over a year or longer. I take Neurontin for the burning pain and it helps some I think but not enough. I also tried Lidocaine and I think it helped somewhat. Has anyone tried Neurontin, Lidocaine, or any other medications that have helped you to get relief from peripheral neuropathy? Has anyone tried any natural remedies or any remedies to help lessen or cure peripheral neuropathy? Any advice or suggestions would be greatly appreciated!! Thanks so very much!!

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Comment from: Spec954, 45-54 Male (Patient) Published: May 31

I just had a punch biopsy which the results came back saying that the peripheral neuropathy has damaged the nerve endings all over my body. I have taken Cymbalta, Neurontin, Lyrica, and have also had many shots in the legs, back and neck and nothing works. I work 40 hours a week and I am on my feet all the time. I wonder if going on disability would be a better fit for me. I am 52 and have had this problem for years.

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Comment from: Goshen, 7-12 Male (Caregiver) Published: May 03

Peripheral neuropathy can also be caused by mosquitoes carrying the West Nile Virus. My son was bitten when he was 7 and has demyelinating polyneuropathy.

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Comment from: Guy52, 45-54 Male (Patient) Published: May 01

I have had PN for over a decade. Cymbalta handles 50 percent of the burning (knees down) and hydrocodone/oxycodone handles most of the remaining burning and cuts the Voodoo doll lightning strikes in half. As I have built up a resistance to opioids, I've had to experiment even more for relief. I have found that using the Preparation H Wipes on a burning area gives about 15 to 20 minutes of relief. It's good to know when breakthrough burning is making you want to scream.

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Published: July 16

I have peripheral neuropathy and have been taking Lyrica (75 mg, three times a day) for three years. I am always tired and depressed because it is not going away. It is most prevalent in the months when I have to wear closed shoes. My family does not understand the pain and anxiety I go through every day. They cannot see it, so they don't believe it. I am currently going to a chiropractor and am hoping that he will align my spine and neck to bring me back to what I was before. He uses manual adjustments with the neck and spine.

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Published: July 15

It began to have problems about 5 years ago, my hands and feet tingling and muscle spasms, they came and went but never stayed long, then a year ago I had problems with my right leg going numb from the thigh down and not being able to stand or walk on it. That lessened and moved to my hands, then to my feet working its way up my legs all the way to my lower back, not in the joints mid muscle with loss of feeling and sensations. Then it went to my hands with weakness and cramping. At times the pain is overwhelming and I get no relief from any of the medications prescribed so far. I want it to end one way or the other.

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Published: July 14

I have pain mostly on my left side of body. It's sharp pain although it has an accompanied sensation which is very disturbing and hard to tolerate. This sensation is like the feeling you get when you scratch your finger nails on a black board. I also get pins and needles along my arms and burning sensation mostly on my palms but at times it is all over including my tongue. When I am depressed, stressed or worried the symptoms seems to increase. This is a problem because I am fatigued from the feeling. I am booked in to see a pain specialist and neurologist in the future but I need something now. Has anybody had same experience symptoms and what helped?

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Peripheral Neuropathy - Symptoms Question: What were the symptoms of your peripheral neuropathy?

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