Patient Comments: Parry-Romberg Syndrome - Signs and Symptoms

Please describe the signs and symptoms of Parry-Romberg syndrome in someone you know.

Comment from: Kathy, 55-64 Female (Patient) Published: March 18

My symptoms started at 5 years old. I am 60 years old. I am still having problems with Parry-Romberg syndrome. On the left side of my face the tissue is getting softer. I have a bad indentation from hitting a door facing. On my right forehead, I have a dark indentation from scalp to my eyebrow. I have a large bald indentation on my scalp. I have a continuous indentation from the big bald area around the top of the scalp to right side forehead indentation. I suffer a lot of pain. I have migraines and serious problems with neuropathy. I have bad problems with digestives systems.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Parry-Romberg Syndrome - Treatment Question: What was the treatment of Parry-Romberg syndrome for a friend or family member?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.