Patient Comments: Pancreatitis - Describe Your Experience

What were your symptoms of pancreatitis?

Comment from: Addie, 19-24 Female (Patient) Published: June 04

I am 20 years old and I got pancreatitis in October of last year. We still don"t know what caused my acute case (I thankfully don"t have chronic, at least, we don"t think so) but I"ve tried being healthier with eating and not eating gluten as I"m intolerant to it which is part of why I think this happened. I had been at work one night and I randomly started getting an ache in my side. I was concerned, but thought nothing of it. It got worse and worse before I went to the doctor that week as they fit me into their schedule. They found nothing and told me "I was thinking possibly pancreatitis but your lab tests don"t show it". I was scheduled for a CT scan that next week and sent home. That Friday I had eaten dinner from a bar one night with my dad and about an hour later, I got really bad pain in my stomach. It got so bad that I started to cry and felt sweaty and hot all over. I was in pain for 8 hours, unmoving and just rocking while holding my stomach, before my parents decided it was time to go to the emergency room (ER). Before we could leave, I started puking so we had to wait again before we could get going. I should have been admitted, but they sent me home with pain killers after giving me fluids, and told me it was pancreatitis. The next day, I ended up back in urgent care instead with a fever of 102 - 103, and the doctor there knew I should have been admitted but due to understanding how expensive bills are he did his best to keep me out. We gave me more fluids and pain killers which helped me feel better enough to stay home. I was out for a week or so, before I could start eating food again (as I"d been on a liquid diet) and before I could go to work. I"m really careful now, to make sure that I don"t have this happen again as it was a really, really bad experience.

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Comment from: Navyman, 45-54 Male (Patient) Published: April 25

I got sick one evening at home, and dealt with the sweating, shakes, and pain for 3 days before my wife took me to the emergency room. I was immediately admitted and stayed there 5 days. My blood pressure upon arrival was 84/58 and I was having trouble standing. The pain in my abdomen was horrific! They hooked me up to a drip for pain management (morphine, I think) and started to hydrate me. I had been a heavy drinker for 10 years or so. I drank, generally, 10 to 15 beers a day, not proud of that. Anyway, I got feeling a bit better after the 5 days, and they let me go home. I worked for the next month to get my strength back. Now, I"m 2 years clean and sober, and I generally feel great, but I"m having some very familiar, very light pains in my abdomen right along my rib cage. I sure hope I don"t have another problem with pancreatitis, but I"m back to the doctor next week. Thanks for everyone for the stories. I actually convinced myself I"m not going to die tonight, anyway.

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Comment from: Cosworth 3, 45-54 Male (Patient) Published: April 22

Today's date is 19/04/2014. I am 54. I"ve had chronic pancreatitis for 4 to 5 years now and have been really ill with it. The back/front and both sides, pain is sometimes so severe that standing, sitting, or lying down are not options. I have had treatment called "celiac block" now 3 times and it really doesn"t help a lot. The medication I take are dihydrocodeine 30 mg as required, as a painkiller (I need 3 for it to work) and Creon 10,000 for digestion and both appear to have a little effect. I might add that the cause was long term alcohol use, which I still drink although not like I used to, and I still smoke which personally I don"t think has any effect on the pancreatitis! I have lost approximately 3 stone in weight and had a pseudocyst which burst and put me in hospital. My sympathy goes out to all sufferers of this wicked disease!

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Comment from: adhregina, 55-64 Male (Patient) Published: March 31

After 2 years, back in 1998, I finally was diagnosed with chronic pancreatitis. My lower back pain often was unbearable and pain killers relieved it a little. I was discharging bile, fatty, gold in color and it stained the toilet. Relief only came when I had a large discharge. I was prescribed pancreatic enzymes for digestion, pain killers, and water pills for my distended stomach, and a few others. Tests had revealed that my portal veins were thrombosed, causing my pancreas to at first be acute. Shortly thereafter it went chronic. Also, scarring had occurred in my liver, thus cirrhosis. I having suffered with this for nearly 8 years now; only wish that I be pain free.

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Comment from: RBlair, 55-64 Female (Patient) Published: March 04

My pancreatitis was 2 years ago. I was having "stomach/bowel" issues (diarrhea and unbelievable gas) especially with fatty foods. I had an appointment with my doctor the next week. It started as a stomach ache and felt like I was going to vomit. I thought I had the start of a flu. The pain got worse fast and we rushed to the emergency room. They gave me morphine; it didn"t really touch the pain! I can"t imagine ever going through that type of pain again. I was in the ICU for 3 days and in the hospital a total of two weeks. I developed a pseudocyst and a blood clot in my stomach. My pancreatitis was caused by a gallstone. Eventually I went back for a week after another episode and had my gallbladder out. And I had another week with a fever, unknown cause. I lost 30 lbs in 2 months. I"m glad to say I have no issues now, except I am an insulin dependent diabetic. But life is good and I am doing fine with my new "normal'. Learnings - if you or a loved one has any stomach/bowel issues get checked out by a doctor.

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Pancreatitis - Treatments Question: How was your pancreatitis (acute or chronic) treated?
Pancreatitis - Causes Question: Did you have gallstones or drink alcohol? What was the cause of your pancreatitis?

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