Patient Comments: Pancreatitis - Symptoms

What were your symptoms of pancreatitis?

Comment from: Cosworth 3, 45-54 Male (Patient) Published: April 22

Today's date is 19/04/2014. I am 54. I"ve had chronic pancreatitis for 4 to 5 years now and have been really ill with it. The back/front and both sides, pain is sometimes so severe that standing, sitting, or lying down are not options. I have had treatment called "celiac block" now 3 times and it really doesn"t help a lot. The medication I take are dihydrocodeine 30 mg as required, as a painkiller (I need 3 for it to work) and Creon 10,000 for digestion and both appear to have a little effect. I might add that the cause was long term alcohol use, which I still drink although not like I used to, and I still smoke which personally I don"t think has any effect on the pancreatitis! I have lost approximately 3 stone in weight and had a pseudocyst which burst and put me in hospital. My sympathy goes out to all sufferers of this wicked disease!

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Comment from: adhregina, 55-64 Male (Patient) Published: March 31

After 2 years, back in 1998, I finally was diagnosed with chronic pancreatitis. My lower back pain often was unbearable and pain killers relieved it a little. I was discharging bile, fatty, gold in color and it stained the toilet. Relief only came when I had a large discharge. I was prescribed pancreatic enzymes for digestion, pain killers, and water pills for my distended stomach, and a few others. Tests had revealed that my portal veins were thrombosed, causing my pancreas to at first be acute. Shortly thereafter it went chronic. Also, scarring had occurred in my liver, thus cirrhosis. I having suffered with this for nearly 8 years now; only wish that I be pain free.

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Comment from: RBlair, 55-64 Female (Patient) Published: March 04

My pancreatitis was 2 years ago. I was having "stomach/bowel" issues (diarrhea and unbelievable gas) especially with fatty foods. I had an appointment with my doctor the next week. It started as a stomach ache and felt like I was going to vomit. I thought I had the start of a flu. The pain got worse fast and we rushed to the emergency room. They gave me morphine; it didn"t really touch the pain! I can"t imagine ever going through that type of pain again. I was in the ICU for 3 days and in the hospital a total of two weeks. I developed a pseudocyst and a blood clot in my stomach. My pancreatitis was caused by a gallstone. Eventually I went back for a week after another episode and had my gallbladder out. And I had another week with a fever, unknown cause. I lost 30 lbs in 2 months. I"m glad to say I have no issues now, except I am an insulin dependent diabetic. But life is good and I am doing fine with my new "normal'. Learnings - if you or a loved one has any stomach/bowel issues get checked out by a doctor.

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Comment from: Butterfly, 55-64 Male (Patient) Published: February 28

I have pain starting at top of rib cage and throughout the whole belly. It"s a constant sharp pain. It does not seem to be better or worse at any time of day or under any specific circumstances. I have no fever. I have been sick with this pancreatitis for over 3 weeks. I get some relief with a heating pad.

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Comment from: catlover2628, 19-24 Female (Patient) Published: January 27

I had felt a sharp knife-like pain in my upper abdomen/stomach and was throwing up constantly for 12 hours. The pain was so severe that it traveled throughout my whole entire spine and shoulders. I couldn't stand up at all. I eventually called and went to the hospital and they gave me morphine, and told me no food or water for 4 days. But my lipase (lipase is a protein (enzyme) released by the pancreas into the small intestine. It helps the body absorb fat) was so high, at 9,000 that I stayed there for a week and a half. I still need to avoid alcohol and large amounts of fatty foods because I can still get small episodes.

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Comment from: Adelade, 75 or over Female (Patient) Published: January 10

It started at midnight, with severe pain in upper abdomen and traveled around to the back, it got worse and then subsided and then worse again, until I finally went to the emergency room. They immediately found that the cause was pancreatitis and gave me morphine and took me off all foods. I was better in three days, after ultra sound, S-ray, CAT scan, MRI and also endoscopy. Hoping not to ever have this again.

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Comment from: GLynn, 45-54 Female (Patient) Published: December 17

On 10 /14/13 I woke up with the worst pain one could ever even imagine. It was so severe in my stomach radiating up to back under my shoulder blades. I was sweating to the point my clothes were soaked. I had my daughter call the ambulance and was taken to the hospital and diagnosed with acute pancreatitis. I was given an IV, antibiotics, and pain medication. Three days later I had a CT scan and was told it showed a 6 inch necrotic part on my pancreas. I was then transferred to a hospital that could treat me and had specialists that dealt with the pancreas. I was in the hospital for 12 days while the surgeons and gastroenterologist chose the option to watch and wait. I was sent home with pain medications but still not feeling better and had a poor appetite. Seven days later I was given an appointment to see the gastroenterologist in the office. I went, barely walking and so weak, I was checked and my stomach was distended and tender to the touch, I was sent for a stat CT scan and lab tests, It showed I had a pseudo cyst that was pressing against my stomach which caused me to not eat and continue to lose weight. I was admitted again and the surgeon was called in to perform surgery the next day to relieve the pressure around the pancreas on 11/8/13. I woke up I had 18 staples down my stomach, and a tube in my nose running from stomach suctioning out the inflammation, and bad juices in my stomach, that time I stayed in the hospital 8 days. I'm home resting, had the staples removed, but I'm still not myself and I'm weak and I developed pneumonia shortly after I was home. On 10/14, I weighed 224.5 when I saw my primary care doctor for the pneumonia on 11/19 I weighed in at 189.0. Depending on what I eat I'm good, but I still have stomach aches and nausea if I don't watch myself. Oh, I am not a drinker and I had my gallbladder removed in 2006. The answer I get is they don't know why this happened to me.

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Pancreatitis - Treatments Question: How was your pancreatitis (acute or chronic) treated?
Pancreatitis - Causes Question: If known, please describe the cause of your case of pancreatitis.
Pancreatitis - Experience Question: Please share your experience with acute or chronic pancreatitis.

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