Patient Comments: Pancreatic Cysts - Diagnosis

How were your pancreatic cysts diagnosed?

Comment from: Sunflower, 75 or over Male (Caregiver) Published: September 23

My husband's cysts were first noted in an abdominal CT scan but the internist failed to heed the radiologist's suggestion to do further tests. He has Type II diabetes. We saw a surgeon who sent him for a EUS and FNA. The FNA caused acute pancreatitis which caused pseudo cysts. These cysts multiplied and within an 8-month period it had grown by a factor of five. They now surround the single meniscus cyst like a large cluster of grapes and have caused the pancreas to be enlarged and decrease the capacity of his stomach. He cannot have surgery because that would cause brittle diabetes He also is on dialysis because later his only kidney failed. His health is now so fragile no one will do another EUS. Because of his kidney he is not allowed any contrast die so a CT scan is virtually useless. Choose your doctors carefully and read every report immediately and make sure action is not delayed. Ask how many FNAs have been done and what % have caused pancreatitis......

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Comment from: worriedmother, 19-24 Male (Caregiver) Published: May 07

My son was admitted to the hospital on 2/7/2015 where he has been currently be in and out. He has a feeding tube and has lost 62 pounds. He has a so called pancreatic cyst that has grown from 1 mm now to 15 mm; they just keep putting off surgery. He is in constant pain and is getting very worn down.

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Comment from: LLE, 25-34 Female (Patient) Published: May 23

I am a 29-year-old healthy female and I had been having abdominal pain for about four years. I went to the ER four years ago but no tests were done at this time. I was given pain pills and sent home a couple hours later. For the next four years, I would have on-again, off-again pain in that same area. About a year ago, I had my IUD removed, thinking it was causing the pain, but the pain persisted. I saw my PCP about a year ago, she ordered a CT scan, and they found a pancreatic cyst on the tail end. Since then, I have had two MRIs, an EUS, another EUS to drain the fluid, one X-ray, and three CT scans. The fluid that was taken was ½ one type of cyst and ½ another type. The cyst keeps growing, and the doctors have finally decided it should be surgically removed, along with my spleen and gallbladder. I'm hoping to get some feedback from others who've had this type of surgery and if they acquired any additional health problems, like diabetes.

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Comment from: Laura, 25-34 Female (Patient) Published: May 10

I am 31, and an otherwise healthy and fit female who does not (and never has) consumed alcohol. After four months of feeling queasy all the time and pain in my right side and back, my doctor sent me for an ultrasound to check my gallbladder. It was fine, but they found a 3-cm cyst in my pancreas. They think it looks like a pseudocyst, but I will have CT scan in the next few weeks to confirm it and decide what to do next.

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Comment from: Beko, 25-34 Female (Patient) Published: October 16

I had a kidney stone that I was unable to pass, ended up in the emergency room, had a CT scan and discovered a 15 cm tumor on my pancreas. Had a partial pancreas removal and spleen removal. Turned out to be a malignant Pseudo papillary tumor of the pancreas. Have been disease free for 4 years.

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Comment from: Student01, 55-64 Male (Patient) Published: June 12

My pancreatic cysts (total of 3, largest 18mm by 24mm) were first noticed when my doctor wanted to look at my liver via ultrasound. The test indicated I had "fatty liver" (no one seemed to care about this), but what was first called "a mass on my pancreas" was noticed. An EDU procedure identified them as cysts. I write to tell people about waking up during the EDU process, it is not pleasant, and I have been a chronic pain patient for 4 years. During this 4 years I have developed a tolerance for drugs that treat pain. The doctor said it was this tolerance that made me wake up. My doctor said I am no longer a candidate for this low level sedation. I guess I gave them a bit of trouble (I do not fully remember), and I am pretty big and strong, they do not want a wrestling match again. I think my cysts will be dealt with through surgery (mainly as I search for reasons I have so much back pain), and I have a feeling I will have my gallbladder taken out as I show moderate/severe chronic pancreatitis, but I do not drink at all and stopped drinking 9 years ago.

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Comment from: janelle, 35-44 Female (Patient) Published: May 03

I am now 40 years old. Four years ago I had my gallbladder removed due to gall stones and one stone lodged in a liver duct. I then had a separate surgery to remove the stone in 2009. I had pain in my right side and I went to the doctor who then did a scope to see what was going on. He said there was sludge in the liver duct and he removed it. During the surgery he cut my pancreas, which caused pancreatitis. I was in the hospital for two months then was sent home on a feeding tube for two months. After getting off the feeding tube I went back to the doctor to find out I have a cyst on the head and tail of my pancreas. They started out small. That was in 2009. Now in 2012, the one on the head of the pancreas is the size of a grapefruit. I am having it drained, and I am truly scared. I am also now a type 1 with diabetes taking six insulin shots a day. Only 20 percent of my pancreas works now. I am hoping after today the pain in my right side and back will go away. I have had pain block after pain block and they just don't seem to be working so all and all I hope all goes well.

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Pancreatic Cysts - Symptoms Question: What were your symptoms associated with pancreatic cysts?
Pancreatic Cysts - Types Question: Were you diagnosed with an inflammatory or non-inflammatory pancreatic cyst? Please share your experience.
Pancreatic Cysts - Treatment Question: What kinds of treatment, surgery, or medication did you receive for your pancreatic cyst?

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