Patient Comments: Osteomyelitis - Symptoms

What were the symptoms of your osteomyelitis?

Comment from: Ali, 7-12 Male (Patient) Published: May 01

I am a 12-year-old kid with osteomyelitis in the C3 area of my neck. I have had 60 shots of antibiotics, and when I do, I sleep with the cannula for three days, and then switch it to another. I had seven MRIs, 16 blood tests, four X-rays, and a biopsy. I still have the pain – it is very irritating.

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Comment from: Pccstudent, 55-64 Male (Patient) Published: May 01

I developed osteomyelitis after a posterior cervical fusion. My fusion was done on in November of 2012 and we did not discover the infection until the end of January 2013. I awoke one morning with the bandage that covered my incision soaked with pus, and my pillow was also soaked in pus. I had two debridements (the doctor took a piece of my vertebrae and sent it to the lab, which confirmed my diagnosis. I spent seven weeks getting wound care and IV antibiotics. I have a huge "divit" on the back of my neck. I still have all the symptoms of chronic osteomyelitis (severe leg and pelvis pain, pain and swelling at the wound site, nausea and malaise). I am scheduled for a myelogram to see if the cause of my pain can be determined. The doctor wants me to stay on Keflex for a year, and then take the metal out. I do not like this plan. I do wonder if the time from when I got the infection and before treatment was started is considered a long time. I can say that my doctors are not very responsive. I can't walk with my head up and I have no stamina. This must get better.

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Comment from: robbie, 45-54 Female (Patient) Published: April 16

I fractured two parts of my foot. I had surgery with a pin placed. The swelling continued for months, and my skin felt so tight that I thought my foot was going to burst.

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Comment from: Nn john, 45-54 Male (Caregiver) Published: April 05

After being back and forth in the hospital for the past 20 years, my 53-year-old father was diagnosed with osteomyelitis in the past year. In our country, medical procedures are very expensive and are government subsidized. He has excruciating pains in his left leg and has also been to the ER numerous times. He has been treated with so much antibiotics over the last five years that he has lost count. Now, he is being told that they want to amputate his leg. There are other options, but the doctors insist on cutting off his leg and he refuses. We are now in the process of seeking other advice and other methods of treatment. This is stressing us out. We need solutions.

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Comment from: real life.., 45-54 Male (Patient) Published: March 12

Over the years that I have dealt with osteomyelitis I have lost hip bones, a half of a foot, have had bed sores, back pain and have had most every other symptom of this disease. But life goes on.

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Comment from: Pete, 65-74 Male (Caregiver) Published: March 12

My husband put in 4 miserable months and lost 20 lbs. before the doctors diagnosed osteomyelitis of his pelvic bone. He even developed blood clots in his leg and lungs. He spent 2 weeks in the hospital, 2 weeks in a nursing home and had 8 weeks of intravenous antiobiotics. It has now been one year and it's back. All this came from numerous urine infections. The future looks rather grim and the doctors just don't seem to have any answers.

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Comment from: liam, 13-18 Male (Patient) Published: February 25

If you get severe pain with no bruising, swelling and not done anything to cause a pulled muscle. Go to the hospital! Your doctor will just say "pulled muscle" like with me. In hospital I tried getting on to a bed and went in so much pain I went into shock and had to be dosed with morphine, tramadol and codeine at the same time and was still in severe pain. So take my advice, if in doubt go to the hospital. The earlier you get treated the less pain you will have to go through. Each day gets more painful untreated.

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Comment from: MBeggin, 65-74 Female (Patient) Published: February 15

Two years ago I got systemic MRSA at age 68. At the same time I had the worst hip pain and could not bear weight on the hip. I got well from the systemic MRSA but it had infected my hip. The pain was excruciating when I moved it. One evening I was paralyzed with pain and taken to the ER. The next time I could not bear another day of pain so I went to the ER. They gave me pain meds, morphine and even the Dilaudid box and it all felt like water. So the doctor took out the neck and head of my femur, washed the hip out and the pain was gone. Now the doctor does not want to do a hip replacement for fear of causing MRSA again or have a hip that does not heal. So I will be in this wheelchair for a long time.

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Osteomyelitis - Experience Question: Please describe your experience with osteomyelitis.
Osteomyelitis - Treatment Question: What was the treatment for your osteomyelitis?
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