Patient Comments: Osteomyelitis - Symptoms

What were the symptoms of your osteomyelitis?

Comment from: Liv R, 25-34 Female (Patient) Published: December 29

I have pan hypopituitarism and on replacement steroids and other medications. I was diagnosed with a suprasellar germ cell tumor in 2007. I had surgery and radiation to head and spine then. I am visually impaired as a result of tumor crushing the optic nerves. I have had a series of bouts of pneumonia since 2012 which required hospitalization. Septicemia in 2013 required 3 weeks in intensive care. Now I have been diagnosed with osteomyelitis in front sinus bone. Symptoms were initially sinusitis which reoccurred a month later, and treated with antibiotics. Then more symptoms, which caused swelling around the right eye and forehead. I had MRI recently which revealed infection so then I had an operation through my nose for this. I am now on intravenous antibiotics for 4 to 6 weeks, then oral antibiotics.

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Comment from: Bj, 45-54 Female (Patient) Published: July 22

My story goes like this: I broke my ankle in 3 places in October. By March the following year I knew that they were going to have to do surgery to remove all the hardware they had put in. I had an infection in one incision a week after the first surgery. In May I had my second surgery. Within 3 weeks I had another infection in the same incision that the first one was in. Now six weeks after the second surgery I still have 2 holes in my leg and severe pain. I went to my family doctor who ordered a bone scan. Bone scan showed an infection. I am currently waiting to find out what treatment I am going to get. The pain and severe burning sensations and the stiffness and swelling make walking even 2 feet almost unbearable. I hate taking pain medications and am taking narcotics on a regular basis. My ankle looks deformed and is discolored. I am just frustrated that the orthopedic doc didn't even consider a bone infection/osteomyelitis.

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Comment from: Lola, 45-54 Female (Patient) Published: July 22

I am a healthy 49 year old female. No chronic illnesses and no history of infection. I woke up one morning and thought I broke my foot in my sleep. I had just pain the 1st day. The next day I had redness and some swelling at the base of my last 2 toes. The swelling and pain progressed and by the 4th day I could not wear shoes and could barely walk on the foot. On the 5th day I could not lower foot below horizontal without severe throbbing pain and could not bear weight. I had lab tests and everything was normal, had an x-ray and everything was normal except for soft tissue swelling. Bone scan finally diagnosed the osteomyelitis. I am on oral antibiotics for 3 weeks so far, probably another 3 weeks to go. Swelling and redness have greatly reduced, pain is now a dull throbbing pain in that foot.

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Comment from: Cracker, 65-74 (Patient) Published: May 22

I am 65 years old and was diagnosed with osteomyelitis of the right heel. I remember the pain, for a while I walked on the ball of my foot until being bedridden for several weeks till I was placed in hospital where a piece of bone was removed from the lower part of my heel. After several months recuperating and physiotherapy, I was ok. The only ongoing problem I had was walking with the heel of my right shoe down, eventually my dad reinforced my shoes. Today with the advent of joggers and high sided shoes I have no problems.

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Comment from: betty, 55-64 Female (Caregiver) Published: February 20

I"m 61 years old and when I was 9 years old I had the most excruciating pain in my right leg. I had a hard time walking for 3 days, on the 4th day I couldn"t walk at all. I had a fever and was crying with so much pain. My parents took me to the hospital for sick children. The doctor did a spinal tap and full checkup. I was then diagnosed with osteomyelitis. I spent two weeks in isolation and was given a shot of penicillin every 4 hours. I was then moved to a regular floor for another 2 weeks and was given penicillin intravenously. I was sent home after one month, then spent an additional month at home. I was walking with no problem after the first two weeks at home. I was totally fine after that and have never had problems with osteomyelitis again.

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Comment from: Katman0, 45-54 Male (Patient) Published: January 02

I was a paramedic and I felt odd physically and months later I was mentally confused. This went on for over 18 months and was progressive with time. My friends, family and workmates were concerned and some of them thought I was drinking or doing drugs or both. I had periods of leg pain, sweats and chills, even night terrors. My family did an "intervention" and I was admitted to the hospital, where I was detoxed and diagnosed with a psychotic break by a shrink. At this point things got worse when I went home and I had to pay a nurse to take care of me for months. I was admitted to two other hospitals and I now was told I had cancer, heart problems some kind of infection which did not show elevated white blood cells. I woke up one morning and was in unbelievable pain in my left leg hip down and I could not walk, had temperature 104 and I had lost 70lbs from 220 to 150 in 6 months. I was told to put my affairs in order and go into rehabilitation. The rehab doctor called it in 6 hours, osteomyelitis, an odd sterile type. I was put on IV antibiotics for 12 weeks. I was in the hospital for 29 days, and the doctors and nurses didn't think I was going to live, or walk or I was not going to be all there if I made it through this at all. That was 7 years ago and I am disabled with a lumbar spine that hurts to even sit. This disease wrecked me and is chronic as this is progressive with age, I am now 55. I had septicemia and it took 4.5 years to get federal assistance.

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Osteomyelitis - Experience Question: Please describe your experience with osteomyelitis.
Osteomyelitis - Treatment Question: What was the treatment for your osteomyelitis?
Osteomyelitis - Diagnosis Question: How was your osteomyelitis diagnosed?

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