Patient Comments: Optic Neuritis - Treatments

What was the treatment for your optic neuritis?

Comment from: Stacy, 35-44 Female (Patient) Published: November 28

I am 40 years old and was diagnosed with optic neuritis in August 2012. It took a week, 3 ER visits, and a diagnosis from an ophthalmologist before I was finally given IV steroids followed by 60 mg daily for a month. Just under 3 weeks of being totally off prednisone, I had another episode. This one is not as painful, there is no vomiting this time. I am told that the degree of pain is rare. I begin my three day course of IV therapy tomorrow. I believe mine is caused by a family history of rare autoimmune diseases. The blessing from all of this is while investigating my eye, doctors discovered a brain aneurysm. My doctors currently feel the aneurysm was discovered in enough time to prevent a rupture. However, I would not wish the pain or vision loss induced by optic neuritis on my worst enemy.

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Comment from: faithfullywaiting, 19-24 Female (Patient) Published: September 26

I'm 24 and I was diagnosed with optic neuritis about 1 year ago and I'm worried I won't ever be able to see out of that eye again. It wasn't the best birthday present I could have asked for, but life is cruel. I don't have MS or any other autoimmune disease which is frustrating because there is nothing I can do the doctors say. I chose not to have steroids done initially which I regret, I waited about 8 months before choosing to take steroids. They only caused me more pain. I also tried a homeopathic route and had no luck.

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Comment from: John barnes, 35-44 Male (Patient) Published: April 05

I have had optic neuritis. It's been 2 years now, and it looks like it's there for life as I have got MS. We take too much for granted.

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Comment from: Becca, 35-44 Female (Patient) Published: March 28

I have had two episodes of optic neuritis. Both were treated with intravenous Solu-Medrol.

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Comment from: rosek, 55-64 Female (Patient) Published: March 27

My first incident was in November of 2012. The visual acuity loss was 20/200 in my left eye, but a decent 20/50 in the right. I received steroid injections and found a great improvement in the pain along with a return to decent vision. However, in February of 2013, my right eye flared again. Despite using steroidal eye drops, I needed another injection.

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Comment from: ajw, 19-24 Female (Patient) Published: June 20

The treatment for my optic neuritis was a Prednisolone tablet for my first attack and then an intravenous steroid during my time on the ward. Then two tablets of Prednisolone again for the second optic neuritis attack.

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Comment from: lisa acartlitch, 45-54 Female (Patient) Published: January 25

Have had optic neuritis for nearly a year now, went through all the tests for MS, brain scans, spinal tap etc, all negative but eye is still the same with about a 90% loss of vision. This is sadly my good eye, the other one is a lazy eye so have had a lot of problems adjusting. They say make sure it doesn't reoccur - hard to know how to stop it as it appeared from nowhere.

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Comment from: DI, 35-44 Female (Patient) Published: November 30

One month ago I lost 100% vision in my R eye over the course of approximately 1 week, and lots of pain with eye movement. I had a MRI showing no other changes. I was given option of having 3 day course of IV steroids, followed by 1 week decreasing dose of oral steroids, which I agreed to. My vision is returning slowly.

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Comment from: menalmum01, 35-44 Female (Patient) Published: June 15

I was unfortunate enough to have been diagnosed with Optic Neuritis in both eyes on 21/05/2011. I was admitted to hospital for 5 days. I had an MRI scan and a Lumber Puncture. I was diagnosed by the Ophthalmology consultant following many tests. At its height I lost 80% vision in my left eye and 50% in my right eye. I took approx 9 days to get to the worse loss. After approx 10 days I had recovered about 90% of my original vision, except for an acute oversaturation of light which forced me to wear sunglasses all the time. After 10 days from leaving hospital I started getting a headache over my right eye and within 3 days had again lost 40% of vision in my right eye. It is apparently unusual to have a reoccurrence so quickly after the first diagnosis. All I can do is wait for my sight to return. However long it will take. I hope this helps. Best Wishes.

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