Patient Comments: Optic Neuritis - Experience

Please describe your experience with optic neuritis.

Comment from: emmykay, 55-64 Female (Patient) Published: February 24

I started losing the color in my left eye. I went to my eye doctor for tests. They did an MRI scan and found a small amount of swelling on my optic nerve. I started three days of IV treatments and 10 days of steroid pills. I am not sure if they helped my optic neuritis or not. I am in my fourth month and have had some improvement. I could not see the sun or colors at first, now I see things, just not the color red and everything is still a blur. My good eye is starting to have drop outs. I have faith in my doctor. I hope things get better.

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Comment from: Bryan, 45-54 Male (Patient) Published: March 14

I woke up one morning with loss of vision and pain in my left eye. I"m a 46 year old male. I went to the eye doctor who diagnosed me with optic neuritis (ON). I also had other sensation issues such as slight sensation loss in my legs and my face. I went to the neurologist who gave me an MRI and found 20 to 30 lesions on my brain. Diagnosis: multiple sclerosis. After a week of IV methapred drug, I have had no new symptoms. I"m now on a pill that is supposed to reduce the number of attacks. The long term prognosis is I should live a long life but I"m to expect my brain to turn to tapioca pudding over that period. And to think, I just finished my doctorate degree.

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Comment from: Darla, 45-54 Female (Caregiver) Published: February 20

My daughter is having eye pain. She had sinus surgery due to strep infection. They thought it was causing pressure on the optic nerve. After 2 weeks, she is still having eye pain. Vision in her left eye has not returned. Question is whether the sinuses can cause this, or she may have another problem. After (6) doctors" opinions, we are at a loss and so are they. I believe she does have optic neuritis as one doctor mentioned. We don"t know where to take her to verify this!

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Comment from: jimr55411, 45-54 Male (Patient) Published: January 23

I had the first bout with optic neuritis in 2005. Many years and tests later I was thought to have multiple sclerosis and I was treated with Rebif but had no brain spots on the MRI scans. In January 2014 I had a blood test NMO-IgG. It was determined that I have Devic's disease and always had it. I now have lung issues as well as optic neuritis and need to use a wheelchair to get around. I am now on disability at fifty and don't have a good prognosis to live. It is always a good idea to get a second opinion.

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Comment from: angeleyesjess, 35-44 Female (Patient) Published: October 08

I have optic neuritis in my left eye. They could not determine the cause. I was hospitalized 4 days, had an MRI, lumbar puncture, and steroids. My vision is not better. It's been 4 months. I get terrible, debilitating headaches, especially on left side head/eye where diagnosed. It is painful. I'm told I have to see a neurologist. I'm afraid to drive. It is horrible pain.

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Comment from: needhelpfast, 35-44 Female (Patient) Published: February 27

I was diagnosed with optic neuritis on December 24th. After every test possible, and going to every specialist possible, my eye still has stabbing pain. I have gone to urgent care, emergency room (ER), and never received help other than a prescription for naproxen (Aleve). My neurologist will not write me any prescriptions for pain medications and told me to take more Neurontin and go to the ER. No doctor will write me a prescription for the pain medications I need. I have tried natural therapy, massages, holistic therapy, everything! I truly am in pain and cannot get a doctor to believe me. What do I do!

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Optic Neuritis - Treatments Question: What was the treatment for your optic neuritis?
Optic Neuritis - Symptoms and Signs Question: What symptoms and signs did you experience with optic neuritis?

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