Patient Comments: Obsessive Compulsive Disorder (OCD) - Experience

Please describe your experience with obsessive compulsive disorder (OCD).

Comment from: dachiemom, 45-54 Female (Patient) Published: July 06

My obsessive compulsive disorder (OCD) started at 9 years old and at 51 now it has gotten worse. I take 40 mg of Celexa once daily but it is not helping me at all. I twist my hair up into knots then pull it out. I am missing a section of hair on the side of my head and I also pick my skin badly and it usually is always on my face or arms and is very embarrassing. I want to stop this but I don't know how. It is ruining my life.

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Comment from: theweechicken, 19-24 Female (Patient) Published: February 24

I have had obsessive compulsive disorder (OCD) for a very long time, and never really realized that the people around me never thought like I did. I used to wash my hands until they would bleed from being so dry. I had to wash them every time I touched a door, thinking about all the other people who had touched that same door. That subsided as I grew older, but I still wash my hands every night before I go to sleep, and I have to make sure every drawer and door are shut in my room. My hands have to be moisturized and my rings have to face the correct way. I have intrusive thoughts that don't feel like they're mine as well. If a stupid, worrisome or scary thought crosses through my mind I will harbor it for months. It's awful. That thought will be in the back of my mind 24/7 until I find a solution or some resolution. It's like being in a battle with your own mind all the time. OCD never stops. I would love to know other people's experiences with using Zoloft and Prozac. They tried to put me on Prozac when I was at a near suicidal point and I refused, but now that I am at a somewhat rational thinking level, I think it may be up for some consideration.

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Comment from: rubyred24, 25-34 Female (Patient) Published: November 07

When I was younger I had rituals and things I had to do. Everything has to be even (volume on a radio or TV, temperature, letters in a sentence) I had to touch everything I ate to my lips first. My teachers would call my parents often for disrupting classes. When I was older I noticed things were better when I was drinking or on drugs. I spent 10 years in addiction and alcoholism. I have been sober/clean for 16 months and it is back and worse than ever. I have to touch everything with my pointer finger last (I have some fear that if my middle finger is the last things that touches something that's bad so I have to touch it again with my pointer finger). I check locks, alarms, ovens and timers over and over. Nighttime and in bed is the worst. I'll be exhausted but get out of bed 20 times or more to check things or try to go to the bathroom when I've already been 2 minutes earlier. If my right leg itches I have to scratch my left too and then my right again because it itched first. I have Bonne Bell Lip Smackers chap stick in every room in my house, car and, office. I have to put it on every 30 minutes. They stopped selling that type of chap stick so I have to order in bulk online. I replay past situations or have fear of future ones nonstop until I end up in a panic attack or tears. I love being sober and clean but I can't sleep unless I'm drugged and it feels hopeless.

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Comment from: pamela, 45-54 Female (Caregiver) Published: October 20

I have suffered from what I consider a mild case of OCD since young childhood. I had Tourette Syndrome really bad with vocal tics and neck and shoulder movement. My mom was very upset with these things because it embarrassed her. It was so frustrating because I could not explain how I had to do these things or I would explode like a bomb. When I became an adult I found out that she was suffering from her own OCD such as she had always counted steps, tiles, bricks, etc. She apologized for losing her patience when I was a child, I grew out of the vocal tics but still do the shoulder and neck tic when stressed. I suffer from anxiety which my mom also suffered. Depression runs rampant on mom's side of family. I now know how my mom felt about my OCD since my younger son age 16yr has suffered since he was toddler. I was fortunate that I had my experience and knew how to get help for him. He has been off medications for 5 years now and recently going through adolescence his symptoms have returned so we are starting the drugs and therapy over again. His depression is great and he cannot shut his brain off. Fortunately, he is a very smart kid who expresses himself very well and can tell me what is going on in his brain. I thank God I have better resources and options than my poor mom had back then. I am 48 years old. God bless everyone who suffers from these often debilitating issues. Pam

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Obsessive Compulsive Disorder (OCD) - Treatments Question: What was the treatment for your obsessive compulsive disorder (OCD)?
Obsessive Compulsive Disorder (OCD) - Symptoms Question: What symptoms do you experience with your obsessive compulsive disorder (OCD)?
Obsessive Compulsive Disorder (OCD) - Risks Question: Do you have a relative with OCD? If so, do you believe there's a genetic risk for developing the condition?

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