Patient Comments: Non-Hodgkin's Lymphomas - Describe Your Experience

Please describe your experience with non-Hodgkin's lymphoma.

Comment from: Ian Mc, 45-54 Male (Patient) Published: June 02

I was diagnosed with non-Hodgkin"s lymphoma (NHL) in 1999. I had CHOP and radiation treatment and made a good recovery. Unfortunately I was feeling somewhat unwell for a while in late 2012 and again it was found that the NHL had returned. This time I had treatment of R-Chop. A good result again that there was no sign of the cancer. I am now on the rituximab maintenance for the next 2 years, taken every 3 months. So far so good. I just feel so tired and find it hard some days to function right. Every pain or ache you think something is not right. You just try and get your head in the right space. I want to go back to work but find it very difficult to imagine what I could do. I think you must try and push through things. I hope things do get better and encourage everyone to do the same. I am sure we can get through this and with some support from loved ones I reckon it is doable. Keep at it all. Do your best.

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Comment from: lyncat, 55-64 Female (Patient) Published: May 22

I was diagnosed with stage 4 non-Hodgkin's lymphoma. I have had chemotherapy followed by radiation to my right hip. I had 8 areas in my bones with lesions. I now have only 2 lesions. I went to a renowned cancer research hospital and given 2 to 5 years. That was back in March. I am doing infusions of an antibody every 2 months to keep my cancer at bay. What a whirlwind! I"m not sure what to make of all this, but I do know that I enjoy life each and every day!

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Comment from: Reggie, 65-74 Male (Caregiver) Published: February 04

My 65 year old brother was diagnosed with stage 4 non-Hodgkin's lymphoma a couple of years ago. He went through two rounds of chemotherapy and was told by his doctor that he was cured! Seven months later, it reappeared in his lymph nodes. Yesterday I took him in to his doctor's office for a simple blood test and his counts were all so low that I had to bring him to the emergency room for a blood transfusion. When we got there, they ran a bunch of tests and found that he was in AF (atrial fibrillation) and had pneumonia. He is in isolation now in the hospital after being transfused and on mega doses of antibiotics. I just hope he has the strength to fight the pneumonia.

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Comment from: ruthie, 65-74 Female (Patient) Published: January 23

In 2007 I was diagnosed with Stage 4 acute T-cell lymphoblastic lymphoma. I was treated with 8 rounds of chemotherapy, 15 treatments of chemotherapy to the brain via the spine, 22 treatments of radiation, and then another 1 1/2 years of out-patient chemotherapy. It was very rare for a person of 62 to have this kind of cancer. As of November my oncologist has told me that I am cured! It was a success story!

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Comment from: jol, 65-74 Female (Patient) Published: January 08

Two days after returning from a beach vacation I suddenly had a terrible back ache. Prior to this I had no problems. In fact was running 3 miles 4 times a week. Back pain was intermittent at first then it became worst and felt like I was passing kidney stone. The doctor's pain medications were of no help so finally had a CT scan that showed a large mass on the left side sitting on the kidney. The pain was pretty horrible so I ended up in the hospital and there I had a biopsy and was diagnosed with stage 3 NHL (non-Hodgkin's lymphoma). Fortunately it was in one location. I had 6 rounds of CHOP. It was pretty tough but my body held out. I had great support from family and from friends and lots of good wishes. I am cancer free today and continue to get scans every 4 months.

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Comment from: 66y0stagea, 65-74 Male (Patient) Published: June 04

From age 18 I had problems in my respiratory system that resulted in a right middle lobectomy at 34. Further problems brought on pulmonary sarcoidosis at 52. From 54 onwards I took methotrexate for rheumatoid arthritis (RA). At 65 I was treated with Aldara for a facial basal cell carcinoma (BCC). I was lucky and the BCC cleared up without any visible signs. I have now been diagnosed with indolent follicular non-Hodgkin"s lymphoma (NHL) stage three.

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Non-Hodgkins Lymphomas - Treatments Question: What treatments were effective for your non-Hodgkin's lymphoma?
Non-Hodgkin's Lymphoma - Symptoms Question: What symptoms of non-Hodgkin's lymphoma did you experience when you were diagnosed?
Non-Hodgkin's Lymphoma - Prognosis Question: What's the prognosis of your non-Hodgkin's lymphoma?

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