Patient Comments: Non-Hodgkin's Lymphomas - Describe Your Experience

Please describe your experience with non-Hodgkin's lymphoma.

Comment from: Tvaldez, 55-64 Female (Patient) Published: February 02

I was diagnosed with stage IV non-Hodgkin's lymphoma in 2002. I am currently receiving chemo for the fourth time. I have had four regiments, and I still need to get two more. I was also hospitalized for seven days in December of last year and diagnosed with PCP (a form of pneumonia). I have been on antibiotics since then, and I have to be on them the whole time I am on chemo since my pulmonary specialist tells me I could get it again because of my compromised immune system. If you or a loved one is going through treatment, have faith and think positive.

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Published: February 02

My mother was diagnosed with non-Hodgkin's lympoma in 2006. She hasn't had any treatment yet, but the doctor has suggested she try Rituxan. Her legs hurt her so badly that she can hardly walk. The doctors have run every test we know of. They say it is not the lymphoma that is causing the problems with her legs, but they can't find any other reason.

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Comment from: rhondagordner, 65-74 Male (Caregiver) Published: February 02

My father was told he had non-Hodgkin's lymphoma in September of 2006. We were told that he would have no problem beating it. He had different kinds of chemo and radiation, but when those didn't work and stem cell was not an option, we knew it was close to the end. Dad was never a sick person before this, but toward the end, he was very sick from the chemo. Before cancer, he weighed 223 pounds. At his death, he weighed 87 pounds. I hope they find a cure soon.

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Comment from: Wendi, 35-44 Female (Patient) Published: September 26

I am a 39 year old woman I who was diagnosed with stage 2 non-Hodgkins lymphoma. I have two sons 20 and 14. I never thought I would be the one to get cancer I have never been sick, but what I would like everyone to know is your mind has so much to do with your healing. I have had six months of chemo and I am so lucky it is going well Good Luck to all out there fighting this it is hard and unforgiving at times, but life is worth the fight!

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Comment from: Rachael, 19-24 Female (Patient) Published: August 21

I am 24 years old, and I was diagnosed with non-Hodgkin's lymphoma when I was 18. I went through six months of chemotherapy, then one month of radiation. Then I went into remission for six years. In that time, I gave birth to two beautiful children. I have just now been re-diagnosed and have started a new type of chemotherapy. It is a scary process, but stay positive and live life to the fullest. You will find it will make you a stronger person in the future.

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Published: June 26

I was diagnosed with Non Hodgkin Lymphoma. The tumor is the size of a grapefruit in my mediastinum. After 6 months of chop treatment I went into remission. I don't usually feel well but all my exams such as ct's and pet's scan are normal as per my oncologist. Although the last year I have been feeling pretty bad. Recently I have pain to my upper lung area. Sensitive to touch and my chest feels like someone is sitting on it. My stress level is pretty high. I feel bad calling my doctor's for answers since they think I am a hypochondriac

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Published: June 20

I was diagnosed with nhl 1 week before last Xmas. Tests have shown that I have it in my stomach and I am on a wait and see. I now have swellings in my throat and tend to get pains there from time to time including sudden and painful head pains which disappear as soon as they have come. I wondered if this was anything to do with my NHL and if anyone else has the same problems.

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Comment from: laurie, 45-54 Female (Patient) Published: March 09

I'm a 49 year old female diagnosed one month ago with a very rare primary breast lymphoma Stage 2 MALT. I was also diagnosed with Hep B antibodies and Hep C. No symptoms of any disease, just a small lump (2cm) in my right breast. I was started on Rituxan/Zevalin for lymphoma and Epivir for the B antibodies nothing yet for the Hep C. I had backache from Rituxan and akathisia from Benadryl during the first infusion. The second infusion was fine. I'm somewhat tired but getting more energy daily. The doctors say platelets will start dropping in approximately 2 weeks. What then? Seems odd to be treated for such serious stuff when I felt fine.

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Non-Hodgkins Lymphomas - Treatments Question: What treatments were effective for your non-Hodgkin's lymphoma?
Non-Hodgkin's Lymphoma - Symptoms Question: What symptoms of non-Hodgkin's lymphoma did you experience when you were diagnosed?
Non-Hodgkin's Lymphoma - Prognosis Question: What's the prognosis of your non-Hodgkin's lymphoma?

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