Patient Comments: Non-Hodgkin's Lymphomas - Describe Your Experience

Please describe your experience with non-Hodgkin's lymphoma.

Comment from: spiprn1, 45-54 Female (Patient) Published: March 11

My lymphoma was detected after I went to the doctor for 3 lumps in my left groin that had grown. I went to the surgeon and he did biopsy and it came back as B-cell lymphoma. The doctor states it is most likely in stage 4 because it is so aggressive and fast growing. I am scheduled for R-CHOP starting this next week.

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Comment from: mikialways, 25-34 Female (Patient) Published: January 28

I am twenty four years old and I had a swollen lymph node in my neck. I thought I had the flu at first so didn't worry about the swelling. Four months later it grew bigger and I decided to get it checked up. Three doctors could not tell me what it was so I finally found my old doctor and she told me it is lymphoma. Yesterday I got this news, tomorrow is my twenty-fifth birthday, and we are still in the process of figuring out the stage. I am terrified, I won't lie, but at least I got some answers and now know what is next.

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Comment from: Lana, 55-64 Female (Patient) Published: November 18

Two years ago I was diagnosed with indolent splenic marginal zone lymphoma. But then a year ago it became aggressive and almost killed me. I had 6 CHOP-R chemotherapy and doing okay. I am now on Rituxan maintenance every 3 months. Although I have good blood tests, I feel so tired that I sleep more than I am awake. I can't hold any job, I used to work in a pharmacy but I can't stand on my feet for more than an hour.

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Comment from: RBMATHIS, 45-54 Female (Patient) Published: June 13

I was diagnosed with non-Hodgkin's lymphoma (NHL) stage 4, and in my bone marrow, in Feb. 2011. I had to have my spleen removed due to being severely enlarged. I took 6 treatments of chemotherapy, my regimen was 'CHOP'. Due to having my spleen removed I was put out of work for 6 months, which I believe was a help not having the worry of going into work. After 3 years of being cancer free, my concern is, for NHL patients if the cancer should return what kind it will likely be. Seems with each 6 months of blood work, I have that fear... I take life one day at a time and enjoy each day that I get!

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Comment from: Ian Mc, 45-54 Male (Patient) Published: June 02

I was diagnosed with non-Hodgkin"s lymphoma (NHL) in 1999. I had CHOP and radiation treatment and made a good recovery. Unfortunately I was feeling somewhat unwell for a while in late 2012 and again it was found that the NHL had returned. This time I had treatment of R-Chop. A good result again that there was no sign of the cancer. I am now on the rituximab maintenance for the next 2 years, taken every 3 months. So far so good. I just feel so tired and find it hard some days to function right. Every pain or ache you think something is not right. You just try and get your head in the right space. I want to go back to work but find it very difficult to imagine what I could do. I think you must try and push through things. I hope things do get better and encourage everyone to do the same. I am sure we can get through this and with some support from loved ones I reckon it is doable. Keep at it all. Do your best.

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Comment from: lyncat, 55-64 Female (Patient) Published: May 22

I was diagnosed with stage 4 non-Hodgkin's lymphoma. I have had chemotherapy followed by radiation to my right hip. I had 8 areas in my bones with lesions. I now have only 2 lesions. I went to a renowned cancer research hospital and given 2 to 5 years. That was back in March. I am doing infusions of an antibody every 2 months to keep my cancer at bay. What a whirlwind! I"m not sure what to make of all this, but I do know that I enjoy life each and every day!

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Comment from: Reggie, 65-74 Male (Caregiver) Published: February 04

My 65 year old brother was diagnosed with stage 4 non-Hodgkin's lymphoma a couple of years ago. He went through two rounds of chemotherapy and was told by his doctor that he was cured! Seven months later, it reappeared in his lymph nodes. Yesterday I took him in to his doctor's office for a simple blood test and his counts were all so low that I had to bring him to the emergency room for a blood transfusion. When we got there, they ran a bunch of tests and found that he was in AF (atrial fibrillation) and had pneumonia. He is in isolation now in the hospital after being transfused and on mega doses of antibiotics. I just hope he has the strength to fight the pneumonia.

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Non-Hodgkin's Lymphomas - Treatments Question: What treatments were effective for your non-Hodgkin's lymphoma?
Non-Hodgkin's Lymphoma - Symptoms Question: What symptoms of non-Hodgkin's lymphoma did you experience when you were diagnosed?
Non-Hodgkin's Lymphoma - Prognosis Question: What's the prognosis of your non-Hodgkin's lymphoma?

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