Ever since I was a baby, my dad remembers I got these odd skin lesions. They continued, as I got older those 'skin lesions' got blown off as acne. Dermatologists even thought so, after all the lesions despite being inflamed and an off color, never showed signs of pus. Doctors noted the cultures always came back positive for MRSA. At 17 I saw a doctor specializing in infectious diseases. He tested me and made the realization I was living my whole life with neutropenia, ANC of 521. I get skin lesions, everywhere. Lately as I've gotten older it gets worse, I recently went to the hospital. Bacteria had entered my blood and infected my lungs and intestines. Now I'm on 100mg of Minocin daily for the rest of my life. Septra won't work anymore and the clindamycin is too dangerous to take for too long. I find myself lucky that I've lived for as long as I have, especially to have had it as a baby. I hope I continue to live. Sometimes I doubt the antibiotics are healthy to take long term but I realize that day I went to the hospital I could've died that night. I felt closer to death that night than I ever have, I thought I was going to fall asleep and pass away. It's scary, especially when you don't have insurance.

I have had neutropenia since I was young but only just found out about it because I have been suffering with ulcers in my mouth and abscess on my face. I am now no GCSF and it's the best thing ever. I no longer have symptoms. Please talk to you doctor, because this is a very serious disease and they can help. I am having my second bone marrow biopsy next week.

I was just diagnosed with neutropenia. I felt fine until today, when I started getting sores in my mouth. I am not scheduled to see the doctor again for a couple of weeks. But I'm concerned, so I may contact him sooner.

I just found out that I have neutropenia. My WBC is 3.2 and neutrophil is 1021. My symptoms are sore tongue, constipation, fatigue and pinprick feelings in my hands and feet area.

My daughter was diagnosed with neutropenia nearly 5 years ago. We have had numerous stays in hospital with infections. She was on amoxicillin for more than 4 years to try and help her fight infections. The last few months her counts have been over one. The doctor thinks she may be growing out of it.

My best friend developed neutropenia at age 21 after quite some time of being ill, at this stage they didn't know what neutropenia was, they have changed the names over the years cyclic neutropenia sepsis (doesn't exist) to cyclic neutropenia to neutropenia sepsis I don't really think they knew much at all, he was constantly in hospital with infections and pneumonia, it got the best of him 6 weeks ago:( he was aged 36. Please if you have neutropenia make sure you look after yourself and read up on it don't just trust the doctors!

I was just diagnosed at the age of 50 with neutropenia. I have never had any symptoms and have been extremely healthy which puzzles both me and my doctor. My doctor recently took over from my previous doctor of 25 years who was retiring and looked back in my file to see I have had this for conditions now for 2 years. I don't know if I should be concerned or not!