Patient Comments: Neutropenia - Symptoms

What symptoms did you experience with your neutropenia?

Comment from: Sky, 19-24 Female (Patient) Published: May 13

I have had neutropenia since I was young but only just found out about it because I have been suffering with ulcers in my mouth and abscess on my face. I am now no GCSF and it's the best thing ever. I no longer have symptoms. Please talk to you doctor, because this is a very serious disease and they can help. I am having my second bone marrow biopsy next week.

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Comment from: Villagekathy, 55-64 Female (Patient) Published: April 02

I was just diagnosed with neutropenia. I felt fine until today, when I started getting sores in my mouth. I am not scheduled to see the doctor again for a couple of weeks. But I'm concerned, so I may contact him sooner.

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Comment from: sunny, 45-54 Female (Patient) Published: January 25

I just found out that I have neutropenia. My WBC is 3.2 and neutrophil is 1021. My symptoms are sore tongue, constipation, fatigue and pinprick feelings in my hands and feet area.

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Comment from: Jacqui, 7-12 Female (Caregiver) Published: November 08

My daughter was diagnosed with neutropenia nearly 5 years ago. We have had numerous stays in hospital with infections. She was on amoxicillin for more than 4 years to try and help her fight infections. The last few months her counts have been over one. The doctor thinks she may be growing out of it.

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Comment from: sad woman, 35-44 Female (Caregiver) Published: August 03

My best friend developed neutropenia at age 21 after quite some time of being ill, at this stage they didn't know what neutropenia was, they have changed the names over the years cyclic neutropenia sepsis (doesn't exist) to cyclic neutropenia to neutropenia sepsis I don't really think they knew much at all, he was constantly in hospital with infections and pneumonia, it got the best of him 6 weeks ago:( he was aged 36. Please if you have neutropenia make sure you look after yourself and read up on it don't just trust the doctors!

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Comment from: MoJo1960, 45-54 Female (Patient) Published: June 30

I was just diagnosed at the age of 50 with neutropenia. I have never had any symptoms and have been extremely healthy which puzzles both me and my doctor. My doctor recently took over from my previous doctor of 25 years who was retiring and looked back in my file to see I have had this for conditions now for 2 years. I don't know if I should be concerned or not!

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Comment from: lilly, Female (Caregiver) Published: May 19

My two year old grandson has neutropinia. He has had all infections at once staph and skin infections scarlett fever and step and over all ear infections now. He is on neurogen shots I give him at home he's two years old and doing well for now we are still waiting for his one year old sister's results on neutropinia.

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Comment from: Siobhan, 55-64 Female (Patient) Published: June 18

I have neutropenia and feel very exhausted. My mouth is sore and my arm aches. Also I am getting shooting pains in the right side of my neck.

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Patient Comments

Viewers share their comments

Neutropenia - Describe Your Experience Question: Please describe your experience with neutropenia
Neutropenia - Treatments Question: How did you treat your neutropenia?
Neutropenia - Diagnosis Question: In addition to blood tests, what other types of tests or exams did you have to determine the cause of your neutropenia?

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