I was diagnosed with cyclical neutropenia after repeated abscesses under my arm and on my back, then strep throat. By this time the hematologist was having me do CBC blood work twice a week. I have never had chemo or cancer for that matter. So it is unclear as to why I got neutropenia. I am on weekly self-injected neupogen. It has helped with the infections. I stopped taking it for three weeks and manifested abscesses again. SO it looks like it may be a lifetime thing.

My husband's white blood count had been dropping for years. He was diagnosed with MDS, his form is neutropenia. He was treated with neulasta once a month for 16 months until it caused his spleen to enlarge and had a threat of rupturing. They have discontinued the Neulasta and he started this week on a Chemotherapy drug called Vidaza - which is supposed to target the bad white blood cells, hopefully get rid of them and let the good ones to grow.

My brother has recently died after the doctors eventually found out what it was after 6 years on every treatment going from Chemo to shots of B12. The last one before he went into the IVU was 6000 extra calories and also direct injections into his stomach. He was in there for pneumonia and never recovered a few weeks later. He was down to around 5 stone and was a fighter. They told him that they released him from the hospital too soon and if he had been left in there they may have helped him more. It was said he had an angry cell that destroyed any white cells in his body and they couldn't do anything now.

I have neutropenia. I was getting lots of infections. I'm now on Neulasta injections. They make me feel terrible for a week, but I don't get infections, so it's the better of two evils.

My daughter has always had bad staph infections in the diaper area. Recently, she had strep throat and had a fever for more than a week. She was hospitalized and was diagnosed with neutropenia. Now they have no answers and no plan of care.

I have had neutropenia all my life. My neutrophils are very low. I suffer mouth ulsers and strep throat a lot. I am constantly washing my hands to avoid getting germs, this helps. I also take cayenne pepper regularly, it kills bacteria. People with neutropenia cannot fight bacteria so cayenne pepper does this for us.

When I was first diagnosed with neutropenia I would get very bad ulcers in my mouth and be sick all the time. I am not allowed to run a fever. I have had 3 bone marrows done and am working on the fourth. I had to give myself shots to bring up my level. I can not find out why I have this. I am continually seeing oncology doctors. My count has gone very low even with the flu. I get big boils on my head. I almost had to be put on IV infusion. I had to have my tonsils out 2 times because I was so sick.

7 years I was admitted to hospital as an emergency following first chemotherapy with an excessive temperature and had started fitting. I was told my white cell count was immeasurable and that I was in the danger zone. I have recently found out I was resuscitated. I spent 5 days in hospital with countless medications and received 2 pints of blood and a nightly injection to boost white cell production. Once my count had recovered I discussed with my oncologists the risks of continuing with the chemotherapy and we agreed to try 50% plus the injection to boost white cell production. This was successful and I had no further adverse reaction.