Patient Comments: Neutropenia - Describe Your Experience

Please describe your experience with neutropenia

Comment from: Masie, 65-74 Female (Patient) Published: April 03

I got neutropenia when I had a toxic shock to quinine. It wiped out my white cells, my neutrophils were zero. I have to live with this.

Was this comment helpful?Yes
Comment from: Momof3, 0-2 Male (Caregiver) Published: October 08

My son has idiopathic neutropenia. They are still searching for the cause. He'll have fevers for days. The hospital staff doubts me now because sometimes he has them in there, other times not.

Was this comment helpful?Yes
Comment from: lilica, 25-34 Female (Patient) Published: July 19

I have neutropenia, since my 20 years, 3 months ago I had vomiting, and I was feeling very tired, I did a blood test that showed that my neutropenia was moderate, was put forward for the hematologist, was not necessary to examine the bone marrow, and he said that I should not neutropenia do not cause me any thing serios, not even fever.and i always feel good.:))))))

Was this comment helpful?Yes
Comment from: KathieP, 19-24 Female (Caregiver) Published: July 17

My daughter was experiencing ongoing diarrhea. Blood tests were done to determine if she had Crohn's disease or IBS. She did not, but blood came back showing she was extremely neutropenic. (100!). She has since been seeing a hematologist, been through more tests than I can list, including bone marrow biopsy.noh, she is now 24, diagnosed at 23. Nobody knows how long she has been this way or why. She has had to go to the ER twice for high fevers/infection. Living with this hanging over her is so disheartening, worrying that every little illness can result in life-threatening infections is awful. The only help is the Neulasta shot which makes her very nauseous and gives pounding headaches for days. And that only helps temporarily. I pray for some type of cure or miracle.

Was this comment helpful?Yes
Comment from: BERT, 55-64 Male Published: June 10

I am 56 years of age I have had neutropenia for 18 years my wcc is 2.5 and my neutrophils are .83 I have had bone marrow tests etc but I have never been sick or been affected by it some can not understand I am not conplaining yet.

Was this comment helpful?Yes
Comment from: emma, 0-2 Female (Caregiver) Published: May 01

My daughter is almost 3. She was admitted to hospital for a viral infection and diagnosed with neutropenia. I have been taking her for weekly blood tests and her levels just keep getting worse. The doctors don't seem too concerned and just want to keep checking her. I don't know if this is normal or if I should seek a second opinion.

Was this comment helpful?Yes
Comment from: sltwitness, 45-54 Female (Patient) Published: November 11

I am now 51 years old, and the first "diagnosis" of neutropenia that I remember was in my late 20s. My allergist tried to determine the cause to no avail. However, I do have a history of Epstein Barr Virus, and also have acetylcholine allergy (a muscle enzyme, also a reaction to changes in hot/cold temperatures), that may be causal. My neutrophil counts generally range from 1300 to 2500, but have been as low as 900, which prompted the lab to insist that I see a hemotologist/oncologist. All tests for various causes were negative, and I was not a candidate for a bone biopsy due to an allergy to the topical anesthetics used during the procedure. He said that if I ever succumb to continuous infections, we would need to do the biopsy (with IV anesthetics and sedation). I seldom get sick, and I do get the flu shot annually as a precaution.

Was this comment helpful?Yes
Comment from: 35-44 Female (Patient) Published: October 23

I am 44 years old and was diagnosed with neutropenia in my 20's. I had the bone marrow tests twice and the only thing they believe contributed to this condition is that when I was 10 years old I had my appendix out in another country and was given a very strong antibiotic (chloromycetin) that was outlawed in the US and they think the drug damaged my bone marrow. Overall, I lead a healthy life, but I need to watch for infections closely and see the doctor right away if I get sick. Sometimes, even with antibiotics, I have a hard time fighting illness or getting over coughs. I always get the flu shot. I have some family members who also have somewhat low white blood cell counts, but not as badly as I do.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Neutropenia - Treatments Question: How did you treat your neutropenia?
Neutropenia - Symptoms Question: What symptoms did you experience with your neutropenia?
Neutropenia - Diagnosis Question: In addition to blood tests, what other types of tests or exams did you have to determine the cause of your neutropenia?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.