Patient Comments: Neutropenia - Describe Your ExperiencePlease describe your experience with neutropenia
Comment from: worriedmom, 25-34 Female (Caregiver)
Published: September 05
My son is just over 1 year old and at 9 months was found to have virus-induced neutropenia. The doctors say there is a good chance it will fix itself in six months or so. Was this comment helpful?Yes
Comment from: Torisnewyork, 19-24 Female (Patient)
Published: August 21
I am 22, and I have recently been diagnosed with neutropenia. I have been taking blood tests, and the doctors still haven't figured what the real problem is. I haven't really had symptoms except for tiredness. Was this comment helpful?Yes
Comment from: smitty, 65-74 Male (Patient)
Published: August 21
I'm 70 years old and halfway through six chemotherapy sessions, but neutropenia cropped up, and I'm on hold until the count goes up. My count is well below the required number as of now. Was this comment helpful?Yes
Comment from: lovinlif2max, 55-64 Female (Patient)
Published: August 21
I have been a cyclic neutropenic for 16 years. I found out about it at 48 years of age. It is indeed a very difficult disease to live with, but I have been so blessed by my doctor who is an expert in neutropenia. I think that is the key with this disease: You need to find a doctor who knows what he is doing and then will do it! Was this comment helpful?Yes
Comment from: Karen, 7-12 Female (Caregiver)
Published: August 12
My daughter is 11 years old and has had neutropenia for a year now. Her white cells are low all the time! We check her counts once a month. Everything is looking good right now! Was this comment helpful?Yes
Comment from: themesquiter, 55-64 Female (Patient)
Published: August 05
My white count has been getting progressively lower. Now at 2.5 on a scale of 3.6-10.6. Specifically, my neutrophil absolute has fallen to 1.4 on a scale of 1.8-6.8. I recently read that the heart pill I am on can cause low white count. I take 2 Rythmol SR caps (225mg) per day. (Propafenone). Has anyone else found this, or other drugs, to be the cause of low white count? Was this comment helpful?Yes
Related Medications: Propafenone Patient CommentsViewers share their comments
Neutropenia - Treatments
Question: How did you treat your neutropenia?
Neutropenia - Symptoms
Question: What symptoms did you experience with your neutropenia?
Neutropenia - Diagnosis
Question: In addition to blood tests, what other types of tests or exams did you have to determine the cause of your neutropenia?
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My daughter has neutropenia. Her neutrophils count varies from 1 to 2%. She was diagnosed after a fever; she also had small blisters in her mouth. She always asks for water, so we presume she is always thirsty. She is 1 year old and nobody really knows why she has it.