Patient Comments: Neuroblastoma - Treatment

What kinds of treatment did you or your child receive for neuroblastoma?

Comment from: Phee, 7-12 Female (Caregiver) Published: July 22

My granddaughter was diagnosed with stage 4 neuroblastoma when she was 5 1/2 yrs. She has endured surgery, chemotherapy, radiation, 3 stem cell rescues, and 2 MIBG treatments. Her first MIGB was successful but she relapsed 7 months later. Her second MIBG was unsuccessful and we are just waiting for a plan of action. My son told me that there really isn't anything that will help. She gets so sick and loses her hair each time she has chemotherapy. Even the 'mild' stuff affects her. There are trials, but she has been eliminated because her bone marrow is now positive for cancer. We wait and hope.

Was this comment helpful?Yes
Comment from: Local Boy Hawaii, 19-24 Male (Patient) Published: May 21

I was born with a neuroblastoma and had surgery three days after birth. Is it possible to have it come back, even though my surgeon told my mother they removed most of it?

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Neuroblastoma - Signs and Symptoms Question: What were the signs and symptoms associated with your or your child's neuroblastoma?
Neuroblastoma - Diagnosis Question: Describe the tests and exams that led to a diagnosis of neuroblastoma.

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.