Patient Comments: Myocarditis - Experience

Please describe your experience with myocarditis.

Comment from: Charlie, 0-2 Male (Caregiver) Published: January 06

My son died of acute myocarditis in 1989 when he was 3 months old. His symptoms were fits and vomiting. He died 2 days after being admitted to hospital after he developed respiratory failure. In those days there was no cure for this acute type he had. I wasn't told of the cause of the virus. He was the 7th person in the world to die of this as well according to the hospital. The Berlin heart is now a treatment while awaiting transplant. He was fit and well one minute and dead 2 days later. No warning signs other than above listed ones.

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Comment from: Gary, 25-34 Male (Caregiver) Published: October 15

My healthy son was 30 years old when he started having a headache on a Friday morning. He went to work that day but came home mid afternoon and said he was very tired and still had a headache. He rested over the week end to try to get ready for work on Monday but when he did not leave for work early on Monday my wife went down to check on him and found that he had passed away during the night. It was found that he had myocarditis and the only signs were headache and tiredness for about 3 days before he passed away.

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Comment from: 19-24 Female (Patient) Published: October 08

I am a healthy and active 19 year old in college and I was just standing in my kitchen with my roommate just talking then suddenly I had a sharp pain in my chest and was dripping sweat within seconds and couldn't stand and tried holding off on going to the hospital, and once I vomited we decided to go to the emergency room. The doctors at first said it was anxiety or stress related, but I knew it wasn't it because I was calm when the initial incident happened. Once they got my blood tests back, they said I had an elevated heart attack enzyme and was taken to the ICU. I got out of the hospital within two days and was on bed rest for the next week, on heart medications, and I cannot do any rigorous actives for the next 3 weeks until my follow up. This is definitely one of the most random things that has happened to me.

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Comment from: tanya, 25-34 Male (Caregiver) Published: June 28

My 26-year-old son died last year due to myocarditis. He was an active father and didn't smoke or drink. He had gone to the hospital 6 months prior to his death and they told him he had pancreatitis, but he had very intense pain in his chest. The week before he died he was also experiencing flu-like symptoms. He died on the way to the hospital. The autopsy report said that he had a heart infection due to the coxsackievirus.

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Comment from: natasha, 25-34 Female (Patient) Published: May 13

One night, I was sitting outside struggling to breathe and my heart was skipping beats. I didn't think anything bad of it because I have asthma. Two weeks later, I was at work and felt confused and couldn't stand up straight. I was dizzy, nauseous, and my heart was beating fast. I went to the doctor, who said I had the flu. He gave me the vaccine injection and the next day I got worse. I went back to the doctor, who prescribed medication for depression. I visited about five doctors, who couldn't tell me what was wrong. Finally, the sixth doctor diagnosed me with myocarditis and gave me antibiotics, a beta blocker, and cortisone. I can't remember the next two weeks. I returned to the doctor and continued to see him for six months. I started to feel better and my palpitations were not as bad. I was worried and didn't want it to be my time to go because I was only 23 years old and had two kids. That was three years ago and I still have palpitations. The doctor says my heart is very sensitive and the best way to get it stronger is to do yoga. My heart still skips beats. In the last year I've had two miscarriages. I went for a test and they can't find anything. The virus turned my life upside down and things will never be the same again. I'm tired most of the time with the heart beats I have and miss out a lot with my kids. I can't play with them like I always did because of my heart. It is killing me slowly to disappoint my family like this.

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Myocarditis - Symptoms Question: What were your symptoms of myocarditis?
Myocarditis - Treatment Question: What forms of treatment, including medication or supplements, have you taken to treat conditions associated with myocarditis?

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