Patient Comments: Muscle Cramps - Causes

What was the cause of your muscle cramps?

Comment from: JAN, 55-64 Female (Patient) Published: October 08

I have suffered with benign faciclations for the last 25 years or so. I am 58 now. I remember vividly when I first felt the faciclations as I was heading home from the gym sitting at a stoplight and I could feel this twitching in my legs below the knee. I thought it was kind of weird but after a few minutes it went away and then it was about 2 weeks later I felt it again and it continued into the night and when I went to bed I got a bad cramp in one of my calves. It went a long time before I felt it again but over the last 10 years it has gotten progressively worse. I saw a neurologist about 10 years ago and after my exam he wanted to do an electromyogram (EMG) test. He felt certain it was benign fasciculations and told me to increase my magnesium and I would be fine. He said the good thing was it's benign which meant no worries. Well, it got worse and worse over the years. Stress makes this condition worse. Last March I was under a lot of stress with my business and I had a mini “meltdown” (my term for it). I had the fasciculation constantly and I had not been sleeping. It is very difficult to relax to go to sleep when this is going on. The twitching grew worse and my heart started beating fast on and off. I used every remedy I had tried before even though they didn't work then but I tried again. I drank almost 2 liters of tonic water and nothing. I spoke with my sister who said I had a panic attack. I had never had one before but my doctor said yes, that is what happened. My doctor put me on clonazepam 0.5 mg and told me to go home, take it and relax. I took it, fell to sleep for a couple hours and when I woke up the fasciculations were gone. They stayed gone for months but the new neurologist I started seeing said the medication will wear off and they have started to do that. It makes me very tired so I can't even take the full daytime dose. I am now trying ropinirole, which is a restless leg syndrome (RLS) medication since I have some of those symptoms. I have been on it about 12 days and last night was one of the worst nights I have had since the meltdown. Before my meltdown I was taking no medications, just vitamins etc. and have been seeing a naturopath. She tried everything as well but nothing worked. It is so frustrating, painful and depressing. If it was just a little cramp and you could walk it off and go back to bed that would be one thing but the fasciculation's cause the cramping so its not stop and the more you relax the worse it gets. Very difficult to deal with.

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Comment from: carl, 55-64 Male (Patient) Published: February 20

I am 58 and have a below knee amputation. I have been suffering for nearly 3 years with terrible muscle cramps in the calf of my leg every day. I have tried everything from medicines to a back operation to shots in the back. I only walk a few feet at a time and have to stop. I've been from doctor to doctor. I've had every test and nothing works.

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Comment from: Ace, 45-54 Male (Patient) Published: February 03

I have a sinus infection along with a prostrate infection to boot. Both my general practitioner and my urologist prescribed me sulfamethoxazole TMP DS 800 - 160 tab and ciprofloxacin HCL 500 MG tablet. I've had the most terrible excruciating pain in my left shoulder and my left hip. Almost unbearable. I don't what is causing this, loss of electrolytes or allergic reaction. I`m not over either problems with my prostrate or my sinuses. I had to stop both antibiotics so that I could function on my job without shouting in extreme pain all the time.

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Comment from: Jill, 45-54 Female (Patient) Published: October 22

I have had horrible problems with my legs for sixteen years. I spent almost a decade sleep deprived. I have tried everything from Neurontin to Irish Faith Healers. I finally found Dilantin. I recently was diagnosed with cramp fasciculation with tremors, and my Dilantin was upped. Life is not only tolerable again, most days, I enjoy it.

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Comment from: Bobbie, 45-54 Female (Patient) Published: May 09

My cramps started 3 months after having herniated disk surgery in my L4- L5 vertebra. I am 54 and it has now been 13 years of pure Hell! From my knees down I have benign Fasciculations. Similar to the eye twitch but every muscle is twitching. I have seen Internal medicine, neurologists, and specialists in muscles. They all scratch their heads and have no clue what can be the cause of it. The last feels it could have been my surgery. So I guess this is a lifetime of cramping on a nightly basis for me. It is so, painful and exhausting not getting sleep. It starts within 20 minutes of falling asleep. Also, if I am just lying in bed in a horizontal position causes it. At times I have to sleep sitting up to get relief. Every muscle in the lower extremity cramps not just the calf. Predominately in the left leg about 10 0/0 in the right leg. I have studied my eating habits and drinking. I cannot determine the food that enhances it but I do know that wine and club soda intensifies the cramps. Also if I walk in heels I will cramp nearly every 30 minutes all night. I know all this sounds extreme but this is my hell I live with every night. My Doctor put me on Baclofen but that has not helped. I have been on that for about 60 days now. I still have cramps nightly. I started taking the "Bob Barefoot Coral Calcium” supplements about 4 years ago. They have helped tremendously. I can go at times 3 days with no cramps. If I stop taking it within 4 days the cramping is horrific again. I read on here recently that cider apple vinegar will help I started that today so we shall see. I know I have been suicidal at times with the pain. No one knows until they experience it. And the lack of sleep makes it impossible to function. If anyone has any ideas please pass along. I don't know if I am an exception but I do know I have never met anyone who has them so bad as I do. I have even thought about cutting my legs off at the knees. I know that sounds drastic but the pain is getting to be too much.

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Patient Comments

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Muscle Cramps - Effective Treatments Question: What kinds of treatments have been effective for your muscle cramps?
Muscle Cramps - Vitamins and Supplements Question: Which vitamins or supplements did you start taking to relieve muscle cramps?
Muscle Cramps - Prevention Question: What measures have you found effective in preventing muscle cramps?

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