Patient Comments: Multiple Sclerosis - TreatmentsHow do you manage your multiple sclerosis?
Comment from: alw0502, 45-54 Female (Patient)
Published: March 03
I was diagnosed with multiple sclerosis in December 2009. The only symptoms that I have are tingling feet and hot/cold sensations on my legs. I still exercise daily and do not have issues with heat or fatigue. I have not started any type of DMDs (medications). I have only had one relapse that required steriods since my diagnosis. Was this comment helpful?Yes
Comment from: honeygu, 75 or over Female (Patient)
Published: February 28
My Multiple Sclerosis symptoms are: pain that started from the side of my knee to my foot. X-Ray showed a disc leaning on a nerve. I was in therapy for 3 1/2 months before my therapist discovered foot drop (or drop foot). I called my primary and requested a MRI. Primary told me I do not have MS, but when I asked how he can be sure, he dismisses my symptoms, which are blurred vision, drop foot, weakness in leg. I also seem to have some memory issues. I realize I am elderly, but all of these symptoms occurred following the incident. I am still having symptoms (except no pain) one year later. Was this comment helpful?Yes
Comment from: Granville, 65-74 Male (Patient)
Published: February 24
I am current on the usual suspects for multiple sclerosis: muscle relaxants, SSRIs, pain medications, Porvigil, Ditropan, and Gabapintin. For 5 years I was on daily injections of Copaxone. I changed physicians and was taken off Copaxone. I haven't felt the same since. Was this comment helpful?Yes
Comment from: sweetpea62308, 45-54 Female (Patient)
Published: February 04
In 2006 I was diagnosed with MS. I had 4 lesions, I underwent the 4 days of solumedral. I had EMG's done. Never did the Dr. order me MS meds. I saw 3 doctors about this. Now after 4 years they tell me I do not have it. I am so frustrated that I have no trust for the medical profession. I worked in the medical profession for over 30 years and I am treated like a second class patient. Was this comment helpful?Yes
Comment from: nana, 55-64 Female (Patient)
Published: February 15
I am a 64 year old female, diagnosed in 2001. Came on all of a sudden in 1999. Was not able to go back to work. Tried every shot available, all made me sick. Then in 2009 went on Tysabri (please read all side effects before taking, then you decide). I took nine infusions, then stopped, felt like it was slowly killing me. It progressed my MS more in nine months than I had in the previous 10 years. All medications out there are for Relapsing which I do not have. Maybe someday they will find a medicine for the percentage of people who do not have RAR. Was this comment helpful?Yes
Comment from: Megan, 45-54 Female (Patient)
Published: October 29
The best thing you can do for yourself is have a good attitude. Even when you feel you cannot. My entire left side melts when stress is apparent. I was diagnosed 22 years ago. You might have MS, but don't let it have you. Was this comment helpful?Yes
Comment from: BLT, 45-54 Female (Patient)
Published: June 21
I have had multiple sclerosis for 20 years now. I take no kind of medications for it. The worst thing that happens is I get overheated. Over the years I can tell when I get too hot. I run into the shower and cool down, even ask people in their yard to spray me with a hose. I may look funny, but it stops an attack for me. Was this comment helpful?Yes
Patient CommentsViewers share their comments
Multiple Sclerosis - Type
Question: What type of multiple sclerosis do you have? How do you cope with your condition?
Multiple Sclerosis - Diagnosis
Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes
Question: Do you have family members who have been diagnosed with multiple sclerosis?
Multiple Sclerosis - Symptoms
Question: The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
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My multiple sclerosis doctor has not seen this, so help me out. 27 years ago I was diagnosed with MS due to an vision issue and tingling. This lasted only weeks...nothing for all these years and then over the past 13 months I have had increased facial nerve problems...eye lid doesn't close, facial muscles not working on the left side, can't smile, unable to raise left eye brow. I look like I had a stroke!