Patient Comments: Multiple Sclerosis - TreatmentsHow do you manage your multiple sclerosis?
Published: January 14
I receive IVIG infusions 3 times a month and I take Rebif. Was this comment helpful?Yes
Comment from: Trying to help, 65-74 Female (Patient)
Published: January 07
I was diagnosed with MS in 1987. I started on Copaxone in Nov 2003. There have been no adverse effects from Copaxone, other than the momentary soreness and swelling for a day or so. My condition has changed only slightly since 2003. I am very pleased with my treatment. I eat well, sleep well and exercise regularly. My attitude is extremely positive. I feel that this has also helped my condition. Since 2004 I have only had two minor relapses. Copaxone is a wonderful treatment for those that it works for. Was this comment helpful?Yes
Comment from: lene, 25-34 Female (Patient)
Published: September 27
I was 14 years old when I was diagnosed with multiple sclerosis. The symptoms that I have encountered are headache and blurring of vision for a week and then total loss of vision. My doctor asked for an MRI for my brain, and lumbar tap. The medications I took were Methylprednisolone injection every 6 hours for 10 days then shift to prednisone tablet. I stayed in the hospital for almost a month. The doctor said that I had a scar inside my right eye and started wearing glasses since then. Was this comment helpful?Yes
Related Medications: Methylprednisolone
Comment from: 55-64 Female (Patient)
Published: July 24
I was diagnosed in 2006 with multiple sclerosis, the only symptoms at that time were falling and legs hurting and moving all the time. I remember no symptoms at all until last year. I went into full seizure mode, I was put on Avonex. I had the symptoms of that medication every day for 13 weeks, I mean I was so sick every day. I stopped that medication and a few days later I was back to my normal self. Then a few weeks later I started having attacks every week and now I'm really bad. It's like one long attack every day. My upstairs neighbors cause me great anxiety every day. I have gotten a new neurologist and she wants to start me on the Copaxone and I do not know what to expect? I know I hurt from when I wake up until I go to sleep. Is there someone that can tell me about their experience on Copaxone? I would sure love to hear about it. Was this comment helpful?Yes
Comment from: Servant, 35-44 Female (Patient)
Published: June 09
Hi All, Apparently I have had MS for many years, but it was never truly diagnosed until recently. In my early 20's I was symptomatic. (Sudden inflammation that caused me to not be able to move limbs, skin tingling, weakness in my extremities) The one thing that i am able to say about this process is that I have been living with MS for many years and I do mean living. I enjoy all of the things that I always did but the one thing I am certain of is that you must be able to take the good with the bad and let the worry roll off of you because it is the worry that will keep you sick and the desire to keep living as you live daily that will keep you well. One day at a time we can and do survive this disease. Be blessed all of you living with this. Was this comment helpful?Yes
Comment from: NOENA, 19-24 Female (Patient)
Published: July 24
You have to change your lifestyle with multiple sclerosis. First from school or from work, as soon as you get back home, just don't take a shower, take note you're tired, you have to stop and rest for about two hours, let your body rest. Next the myelin sheet or that covering on the neurons /roots is being deteriorated, basically your deficient on Vitamin b12. Don't abuse your body on work. Rest! MS is just a stress from your own lifestyle. I have multiple sclerosis, but I'm moving on. I take USANA food supplements with Vitamin b12. Was this comment helpful?Yes
Patient CommentsViewers share their comments
Multiple Sclerosis - Type
Question: What type of multiple sclerosis do you have? How do you cope with your condition?
Multiple Sclerosis - Diagnosis
Question: How many doctors did you go to before you received a multiple sclerosis diagnosis?
Multiple Sclerosis - Causes
Question: Do you have family members who have been diagnosed with multiple sclerosis?
Multiple Sclerosis - Symptoms
Question: The symptoms of multiple sclerosis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.
Report Problems to the Food and Drug Administration You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088. |
Get the latest health and medical information delivered direct to your inbox FREE!
If you think you have a medical emergency, call your doctor or 911 immediately.



I have had MS since I was 27 years old. It started with retrobulbar optic neuritis. My vision returned to normal and I am now in my 50's with no symptoms. I have been on a basic diet since then and I do not eat meat, only fish. I now take Copaxone shots once a day since the age of 35.