Patient Comments: MRSA - Describe Your Experience

Please describe your experience with MRSA.

Comment from: ,o,skid, 75 or over Female (Caregiver) Published: June 10

My mom was diagnosed with MRSA when she was hospitalized for a radical double mastectomy. The diagnosed it by taking swabs of her nasal passages. After being put on the antibiotic, which she used religiously, she got a staph infection in the incisions from the surgery. She is a dialysis patient - has been for a little over 3 years. About 8 months ago, they had difficulty getting the fistula for the dialysis to work and they sent her to the hospital. She was admitted for a procedure to unclog the fistula, place a stent and place a couple of balloons up there as well. She was put into an isolation room with no telephone or bathroom. She was told it was because of her history of MRSA. Why not do the rapid test and see if she is carrying it? It was very demeaning for her to have to call and have a porta-potty brought in - to say nothing about the lack of privacy. And when she wanted to use a phone, we had to go out and find one from a nurse. Is it always going to be this way when she is admitted to a hospital now? She hates the isolation rooms because they are primitive!

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Comment from: Jane, 75 or over Female (Caregiver) Published: April 08

After my uncle had a heart attack and open heart surgery, he picked up the MRSA virus in ICU. It spread to the wounds in his chest and he had to spend four months in hospital. The virus destroyed his chest and ribs. The result is that no ribs can be replaced by screws because of the weak remaining rib structure. He lost 35 kg of weight, and has to learn to walk again. We don't know what the future holds for my uncle.

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Comment from: Dee, 45-54 Female (Caregiver) Published: April 05

I just lost a dear friend to MRSA. She suffered for years. She possibly developed this from caring for her mother, who was on oxygen. My friend changed her mother's nasal set up frequently. She was treated for a persistent cold, then flu, and finally, MRSA. It was already in her blood stream. She had surgery on her spine, where it settled. She suffered for years. Her liver was destroyed from the antibiotics. She would swell up and have to go through constant tapping. She died at age 54 – loved life, and fought hard, until the end. She wanted to beat this so much!

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Published: July 07

I am 21 years old and one night my thigh right above my leg started to hurt and just kept hurting more and more and swelling more as the night went on. After a day I could hardly walk on my leg because it hurt way too bad. I had a scab on it and picked it off which caused my leg to puss out for 48 hours until I finally had my surgery. Any pressure on the leg would make it puss out a lot more. By the second day there was a white stringy puss coming out along with the thick bloody puss. They cut my leg open and cleaned it out and I was on vancomycin 3 times a day for the week I was in the hospital and even though I have been released I have to go to the hospital every 12 hours for another treatment of vancomycin. This is going to last for at least 2 weeks after I am out of the hospital and then after the 2 weeks they will see how my blood samples look and I may still have to go in for treatments longer. I normally do not like to go to doctors but I am very happy that I went to the ER for this one in a reasonable amount of time of 2 days.

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Published: July 07

I have been diagnosed with MRSA. I have had many Surgeries and Hospital stays due to it. My advice to everyone is if you think you may have signs of the infection, please seek medical attention immediately. I thought mine was just a simple spider bite, but I was wrong, my dad was the one who told me about the infection, when he looked at the red swelling of the area, he stated that it looks like the MRSA. I got up to go to work the next morning, and I couldn't even walk because the area infected was right at the bottom of my knee cap, and as soon as I went into the emergency room they took one look at it and they knew what it was. I have had many medications, and hospitalizations from it. Keep Lysol or Clorox wipes handy, and antibacterial sanitizer handy so it would spread to others, I just hope that all of you are healthy and never catch this, because it is really devastating and painful to have and I just don't want anybody to go through what I have been through over the past 9 months!

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Published: June 26

I have been dealing with these abscesses in my armpit for going on about 6 years now they are very painful. They are like little cyst that appear from nowhere I had many the size of golf balls and 2 the size of a baseball. I have had 12 removed from under my arms and many others that drained by themselves. Well back in the beginning of May this year I had another one. I went and had it lanced then the end of May I got 2 more, same thing I went and had them lanced it was then that they told me I had MRSA . I don't know how long I've had it. I'm taking all the precautions I can to make sure my two boys don't get it. I have read a lot about it on the net and to be honest I'm scared to death. I worry about it so much I make myself sick to where I can't eat for 3 or 4 days because I have my stomach messed up. So it's a daily stress for me.

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MRSA -Treatment Question: How was your MRSA treated?
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