Mitochondrial Disease (cont.)

Is there any treatment for mitochondrial disease?

Although there is no specific treatment for any of the mitochondrial myopathies, physical therapy may extend the range of movement of muscles and improve dexterity. Vitamin therapies such as riboflavin, coenzyme Q, and carnitine (a specialized amino acid) may provide subjective improvement in fatigue and energy levels in some patients.

What is the prognosis for mitochondrial disease?

Comment on this

The prognosis for patients with mitochondrial myopathies varies greatly, depending largely on the type of disease and the degree of involvement of various organs. These disorders cause progressive weakness and can lead to death.

What research is being done for mitochondrial disease?

The NINDS conducts and supports research on mitochondrial myopathies. The goals of this research are to increase scientific understanding of these disorders and to find ways to effectively treat, prevent, or potentially cure them.

Organizations

Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ 85718-3208
mda@mdausa.org
http://www.mda.org
Tel: 520-529-2000
800-572-1717
Fax: 520-529-5300

United Mitochondrial Disease Foundation
8085 Saltsburg Road Suite 201
Pittsburgh, PA 15239
info@umdf.org
http://www.umdf.org
Tel: 412-793-8077
888-317-UMDF (8633)
Fax: 412-793-6477

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT 06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100
Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

MitoAction
P.O. Box 51474
Boston, MA 02205
info@mitoaction.org
http://www.mitoaction.org
Tel: 888-648-6228

REFERENCE:

"NINDS Mitochondrial Myopathies Information Page." National Institute of Neurological Disorders and Stroke. 16 Dec. 2011.


Last Editorial Review: 12/16/2011


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Mitochondrial Disease - Symptoms Question: What symptoms do you have of mitochondrial disease?
Mitochondrial Disease - Treatment Question: What kinds of treatment, therapy, or medication have you received for mitochondrial disease?
Mitochondrial Disease - Prognosis Question: What is the prognosis for your mitochondrial disease?