In this Article

• What is microcephaly?
• What causes microcephaly?
• What are the signs and symptoms of microcephaly?
• Is there any treatment for microcephaly?
• What is the prognosis for microcephaly?
• What research is being done on microcephaly?
• For more information
• Microcephaly Glossary
• Microcephaly Index

What is the prognosis for microcephaly?

Some children will only have mild disability. Others, especially if they are otherwise growing and developing normally, will have normal intelligence and continue to develop and meet regular age-appropriate milestones.

What research is being done on microcephaly?

The National Institute of Neurological Disorders and Stroke (NINDS) conducts research relating to microcephaly in its laboratories at the National Institutes of Health (NIH) and supports additional research through grants to major medical institutions across the country. A small group of researchers studying a rare neurometabolic syndrome (3-PGDH), which causes microcephaly, have successfully used amino acid replacement therapy to reduce and prevent seizures.

Select this link to view a list of studies currently seeking patients.

For more information

The Arc of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Info@thearc.org
http://www.thearc.org
Tel: 301-565-3842
Fax: 301-565-3843 or -5342

Birth Defect Research for Children, Inc.
800 Celebration Avenue
Suite 225
Celebration, FL 34747
betty@birthdefects.org
http://www.birthdefects.org
Tel: 407-566-8304
Fax: 407-566-8341

March of Dimes Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-428-7100 888-MODIMES (663-4637)
Fax: 914-428-8203

National Dissemination Center for Children with Disabilities
U.S. Dept. of Education, Office of Special Education Programs
P.O. Box 1492
Washington, DC 20013-1492
nichcy@aed.org
http://www.nichcy.org
Tel: 800-695-0285
Fax: 202-884-8441

SOURCE: National Institute of Neurological Disorders and Stroke, National Institutes of Health

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