Patient Comments: Meniere's Disease - Symptoms

Please describe your symptoms of Meniere's Disease.

Comment from: John, 55-64 Male (Patient) Published: March 21

My first attack of Meniere's disease was over 20 years ago. I had profuse sweating and dizziness, spinning, vomiting, loss of hearing and fullness. I was taken to an emergency clinic since the people with me thought it was a heart attack. I was referred to an ENT who diagnosed Meniere's syndrome in my left ear. Prior to this first attack I remember numerous occasions of hearing water running, which of course was not real. I had episodic tinnitus for years before that which would resolve themselves. After about a year it resolved with some hearing loss and occasional ear fullness. I really did well for about 10 years but it returned with a vengeance. I felt I had been hit on the left side of my head with a ball bat; ear roaring and all the other symptoms. Now it is back and never seems to go away; a constant ache for years now and now it is developing in the right ear. It is very hard to cope. I am taking diuretic, exercise and trying to enjoy life although it seems impossible most of the time. What a horrible disease.

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Comment from: Elaine, 45-54 Male (Caregiver) Published: January 28

My husband first got Meniere's disease 25 years ago. He had dizziness, sickness, pressure, and hearing loss. It lasted 2 years and went away. It came back in 2011 with a vengeance; room spinning 24/7, constantly feeling sick, tinnitus in right ear, and loss of hearing. I have now been shown how to inject him with anti-sickness medication to help. He is now retired.

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Comment from: Tater, 45-54 Female (Patient) Published: October 05

I have just been diagnosed with Meniere's disease yesterday after only having symptoms for the past 2 weeks. It started quite suddenly at work. I had a fullness in my left ear and loud roaring, never any pain, and this has never gone away since. I have significant hearing loss as well. I have had 2 attacks of dizziness where I had to sit down and one day where I was nauseated but not spinning. I had a series of tests, and MRI to rule out tumor on the brain. After hearing that I did not have a tumor but have Meniere's disease, I count myself fortunate if this is my lot in life. I know it will be a struggle but I am in for the long haul. Good luck, my Meniere's friends!

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Comment from: jean, 55-64 Female (Patient) Published: June 24

My symptom of Meniere's disease is that in my right ear, there is a sensation of a distorted hearing when in a noisy setting, small room with everyone taking, loud taking, hair drier, blender, etc. This sensation is in one ear. Now I am beginning to experience dizziness and occasional vertigo, even when turning in bed.

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Comment from: Terri, 55-64 Female (Patient) Published: May 21

I have had Meniere's disease for 5 years now. My symptoms include vertigo, nausea, fatigue, brain fog, hearing loss, and tinnitus. After years of going to an ENT, she referred me to another ENT who specializes in dizziness. He gave me some options, all of which included destroying my balance nerve to alleviate the vertigo. I didn't want to go this route. I got on line and read everything I could on the disease. I found a vitamin regimen that has kept me symptom free (except for the hearing loss and the tinnitus) for four months now.

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Comment from: Suzy, 45-54 Female (Patient) Published: August 28

I've struggled with Meniere's disease for 15 years. Mine started when I began to take a birth control pill. By the time I realized that was the problem, it had done the damage. For women, avoid anything hormonal such as birth control, topical progesterone, etc. I use an herbal allergy medicine and it helps me a lot when I'm symptomatic. Something about pulling fluid from the middle ear may relieve fluid in the inner ear. I just started menopause, and it has been difficult. I notice over 15 years, the dizziness and nausea do get more manageable. When I first got it, I would lay on the floor for hours with the room swirling, now I almost never have it that bad.

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