Patient Comments: Meniere's Disease - Symptoms

Please describe your symptoms of Meniere's Disease.

Comment from: WhatHelpedMe , 35-44 Female (Patient) Published: October 16

I would highly encourage everyone to insist that their physicians give them a trial of hydrochlorothiazide, which is a diuretic. I had roaring tinnitus, with fullness and pressure (no vertigo) in my right ear for months, and did all the tests, nothing was working to alleviate the roaring and thumping sound. I noticed that when storm fronts approached, there was a pattern of it worsening, and that I heard tones in two different pitches (example: if I called someone on my cellphone, the dial tone would be lower in my affected ear, and higher--normal--in my unaffected ear. These are all symptoms of atypical Meniere's, in other words, no vertigo, but all of the other fullness/pressure, roaring symptoms. After putting up with this for 6 months, I finally insisted on my doctor's trying to treat it as Meniere's, and sure enough, the very day I tried the hydrochlorothiazide water pill, the fullness was much relieved, the pitch difference would be gone for the day, and the roaring would be almost unnoticeable. Please try this and pass the word on to others, in case their doctor's tell them it's just incurable tinnitus. I have to take the pill for the rest of my life, but it is very much worth it. It also prevents further hearing loss. So it's important to have this treatment.

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Comment from: masoudh, 25-34 Male (Caregiver) Published: September 03

I have a heavy vertigo because of Meniere's disease that I can't walk 2 steps! The world is circling around me!

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Comment from: vparadise, 45-54 Female (Patient) Published: May 22

I have had Meniere"s disease since 2012, and then it went away, and came back in 2014 with different symptoms. I drove myself to the doctor, but soon thought that that was a bad idea, when I started entering other lanes.

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Comment from: hiddenlove, 35-44 Female (Patient) Published: February 12

For several years I had vomit, nausea and ringing in my ear and never knew what it was until I found out I have Meniere's disease.

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Comment from: gabstardeluxe, 19-24 Female (Patient) Published: August 06

I had vertigo for about a year and two months before my dad died, I ignored my symptoms and it wasn't until about 8 months after he died I found out I was quite unwell. Renal failure runs in my family so I can't take diuretics. I am on stemital and serc for the Meniere's. I have had quite A few falls and I feel like I'm being thrown around on a roller coaster. The tinnitus is mainly in my right ear. I hate not being able to bend down and my house is atrocious. =(

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Comment from: mammy donna, 45-54 Female (Patient) Published: March 16

I have had the symptoms for about 10 years but was actually diagnosed with Meniere's disease about four years ago. I have all of the common symptoms, but in the last year, I have started having the sensation of loosing my stomach (like when you are on a roller coaster, and you go over the top or that big dip at the bottom). It is so realistic that I actually let out a loud moan. I have never read of a symptom like this. I have said many of times that it is a good thing that I am totally incapacitated during these attacks. There are times when I would rather be gone than to go through this feeling.

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Comment from: Skye, 35-44 Female (Patient) Published: March 10

I have just been diagnosed with Meniere's disease, although I have been suffering with symptoms for more than nine years. The first time I had an attack, I was so scared. I was too dizzy to see the numbers on the phone to call my husband. It felt as if I was going to be flung off the Earth! It made me vomit and walk into walls. I've had a few attacks like that since, but they don't seem to be quite as violent anymore, just more frequent. I don't have the ringing or hearing loss, and that is why it's taken the ENTs so long to diagnose it. It is quite debilitating. I feel tired and kind of spaced out at best and then the dizzy spells in between; especially when I look up, lie down, etc.

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Comment from: widget, 45-54 Female (Patient) Published: January 16

I have been treated for Meniere's disease for three years now. My vertigo was so bad that on the onset I had to be taken to the hospital by ambulance. I could not get off the floor without assistance. Since then, I have learned to stick with a low-sodium diet and to stay on my diuretic.

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