Patient Comments: Meniere's Disease - Symptoms

Please describe your symptoms of Meniere's Disease.

Comment from: gumby, 55-64 Male (Patient) Published: January 23

In my early 20s I had dizzy spells and later in life I have had dizzy spells and total loss of equilibrium to the point of vomiting, and more frequently also. I have no hearing loss with the Meniere's disease, but very exceptional hearing.

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Comment from: Jeff, 45-54 Male (Patient) Published: December 16

I'm fighting a bit of a quandary in that the vertigo/nausea is not part of my symptomology, at least not now. Two years ago I was snorkeling and the next day I developed acute vertigo attacks, primarily when getting out of bed or dipping my head and then bringing it back to vertical. After 2 weeks these subsided. I've always had a dysfunctional eustachian tube, and hearing issues that were dealt with by decongestants, nasal steroids (Flonase), and ear canal irrigation. However over the past 2 years, I've had progressive tinnitus at high tones, and as far as a year ago, my hearing was 'okay'. But since this spring, a low tinnitus kicked in, constant 'fullness' in my left ear, and conductive response dropped to zero in my left ear and an overall 20db drop in left ear response. MRI and blood tests were negative. But the ENT doctor at the time was not pursuing Meniere's because there was no vertigo issue. After 6 months (I've moved), I met with a new ENT and the tests showed another 20db loss. I've started low sodium and diuretics, dropped caffeine, and reduced my alcohol to 3 drinks a week, but after 3 weeks, not much to report.

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Comment from: Peter, 25-34 Male (Patient) Published: March 04

My Meniere's started with vertigo and nausea that went away for a while, but about one to two months later, the tinnitus started again, and for the last four months has not stopped. It's mostly in the left ear but also a bit in the right and more or less at the same pitch, but it fluctuates just slightly. The ENT specialist said I just have to accept it. Coming to terms with it has been tough, but I think it's slowly getting easier to accept. Day-time is manageable, lately I've often forgotten it's there, but night-time can be rough at times. Melatonin usually helps me get to sleep a bit easier. The vertigo is not as severe as it was right at the beginning, but it is still unsettling, especially when out in public. I've found I've started getting some mood swings too, which I think are likely from pent up frustration with the tinnitus. But I'm trying to just enjoy life and take pleasure in some of the simple things that I would have taken for granted before or never appreciated as much. Walks outside, a game of golf, gardening just the simple company of friends, video games, etc. I think a positive outlook goes a long way in being able to deal with this sometimes debilitating condition. I wish all fellow sufferers the best of luck in dealing with it.

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Comment from: Natjoy, 45-54 Female (Patient) Published: July 30

I am reading the symptoms and wonder if I have Meniere's disease. I have had symptoms for a few years. Sounds like 'white noise' is always in my ears... louder when it's quiet. My right ear often aches and there is a feeling of pressure and sometimes pain, the worst symptom is when my hearing is altered and all I hear is myself speaking. If you put both fingers in your ear and talk that's what it sounds like. This happens intermittently and probably up to an hour or so but socially it causes huge anxiety as I can't judge how loud I'm talking. I hate this. This is the reason I am now seeing an ENT specialist as I can't cope with this one symptom.

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Comment from: kpm, 55-64 Male (Patient) Published: November 18

I have Meniere's disease for 25 years or so. For many years when I initially was diagnosed I followed the low sodium diet and went through every known treatment to treat the debilitating vertigo. Nothing had any real effect. What changed my life and brought the vertigo under control is when my doctor prescribed Dyazide (brand only) and the use of a Meniett device. This device pulses air through the tube in my ear drum and helps flush moisture from the inner ear. I still have minor episodes, tinnitus, and severe hearing loss but I can live, work and ride my bike.

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Comment from: young_meniere's, 25-34 Male (Patient) Published: March 04

I am 29 and have been suffering with Meniere's for 14 years. It has been beyond awful. Vertigo, hearing loss, tinnitus, feeling as if I always have the flu, sound sensitivity, the whole bit. There have been points in my life that were very difficult ... at times I considered quitting my job, quitting my family, and giving up on trying to live a productive life. I actually felt that bad! I've tried many things: the Meniette device, profusions, vitamins of all sorts, sound therapy, water pills, etc. Nothing seemed to help a ton. They say there is no cure. But lately, I've found success with my own treatment. I have been riding my bike to work 13 miles each way - I think it helps me use my good ear's balance system and keep it strong. I think that the cardio exercise helps keep my ear and body strong. I also eat as healthy as possible and get additional exercise at the gym. I still do the music therapy when I can (sound therapy international). I also take vitamins when I can - especially Bioflavonoid (for ringing ear) and vinpocetine (helps with dizziness). I haven't been on a water pill for quite some time and no other perscriptions. My theory is that if I make my body as strong as it can be, it will compensate for the Meniere's. Basically, I'm making a positive out of a negative. I have Meniere's, there's no cure for it, so I used it as strong motivation to change my life and live as a healthy productive adult. So far, it has worked. I feel great! I haven't been dizzy for quite some time and when I have had attacks, they've been minor and I can go on. I also have tried to ignore the ringing and dizziness. It's really all in my head...I'm not on a carnival ride or a concert even though it feels like it. Positive thoughts work! If you think about your pain and ear noise all day, it's right there with you. If you try to focus on other activities, it can go to the background. I feel so much better and I'm living life. I'm no doctor, but my advice to anyone is, get healthy, stay positive, treat your body well and fight Meniere's. Don't let it get you down! Fight it. It's just a tiny little enlarged sac in your ear. It won't kill you, don't let it get you down. Best wishes and good luck!

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