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November 24, 2009
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Patient Discussions: Meniere Disease - Symptoms Experienced and Effective Treatments

Meniere Disease - Symptoms Experienced and Effective Treatments

The MedicineNet physician editors ask:

Please describe your symptoms and effective treatment for meniere disease.

Comment submissions for this question have ended. Patient Discussions FAQs


Related Article: Meniere's Disease

The following Patient Discussions have not been medically reviewed. See additional information.


Comment from: msmistya, 25-34 Female (Patient)

I was diagnosed with Meniere's about five years ago. I have awful vertigo and ringing in my ears, but no nausea. My doctor prescribed meclizine, which helps. I started taking a multivitamin a few months back and have seen major improvements in the vertigo. I was dizzy daily before, now I still have the "sensation" but not the overwhelming, dropped-to-my-knees attacks like before. I don't know if taking the vitamins helped or if it's my imagination, but I can tell a difference when I don't take them. The vertigo gets worse. Published: January 16 ::

Comment from: Nancy, 45-54 Female (Patient)

I had two Meniere's disease attacks about four years ago. I was extremely sick, could not open my eyes or eat, and was in bed for two days. When my hearing was checked, I already had 30% low-base hearing loss. I tried the water pills, and they just did not work that well. I reduced my sodium intake to around 1,000 mg a day (which is very bland food, but you get used to it). I have not had vertigo or an attack since. When I get a slight queasy feeling or tinnitus (I know I have had too much sodium that day), I will take a half of a motion sickness pill. Published: November 19 ::

Comment from: WhatHelpedMe , 35-44 Female (Patient)

I would highly encourage everyone to insist that their physicians give them a trial of hydrochlorothiazide, which is a diuretic. I had roaring tinnitus, with fullness and pressure (no vertigo) in my right ear for months, and did all the tests, nothing was working to alleviate the roaring and thumping sound. I noticed that when storm fronts approached, there was a pattern of it worsening, and that I heard tones in two different pitches (example: if I called someone on my cellphone, the dial tone would be lower in my affected ear, and higher--normal--in my unaffected ear. These are all symptoms of atypical Meniere's, in other words, no vertigo, but all of the other fullness/pressure, roaring symptoms. After putting up with this for 6 months, I finally insisted on my doctor's trying to treat it as Meniere's, and sure enough, the very day I tried the hydrochlorothiazide water pill, the fullness was much relieved, the pitch difference would be gone for the day, and the roaring would be almost unnoticeable. Please try this and pass the word on to others, in case their doctor's tell them it's just incurable tinnitus. I have to take the pill for the rest of my life, but it is very much worth it. It also prevents further hearing loss. So it's important to have this treatment. Published: October 16 ::

Comment from: mammy donna, 45-54 Female (Patient)

I have had the symptoms for about 10 years but was actually diagnosed with Meniere’s disease about four years ago. I have all of the common symptoms, but in the last year, I have started having the sensation of loosing my stomach (like when you are on a roller coaster, and you go over the top or that big dip at the bottom). It is so realistic that I actually let out a loud moan. I have never read of a symptom like this. I have said many of times that it is a good thing that I am totally incapacitated during these attacks. There are times when I would rather be gone than to go through this feeling. Published: March 16 ::

Comment from: Skye, 35-44 Female (Patient)

I have just been diagnosed with Meniere’s disease, although I have been suffering with symptoms for more than nine years. The first time I had an attack, I was so scared. I was too dizzy to see the numbers on the phone to call my husband. It felt as if I was going to be flung off the Earth! It made me vomit and walk into walls. I've had a few attacks like that since, but they don't seem to be quite as violent anymore, just more frequent. I don't have the ringing or hearing loss, and that is why it's taken the ENTs so long to diagnose it. It is quite debilitating. I feel tired and kind of spaced out at best and then the dizzy spells in between; especially when I look up, lie down, etc. Published: March 10 ::

Comment from: widget, 45-54 Female (Patient)

I have been treated for Meniere's disease for three years now. My vertigo was so bad that on the onset I had to be taken to the hospital by ambulance. I could not get off the floor without assistance. Since then, I have learned to stick with a low-sodium diet and to stay on my diuretic. Published: January 16 ::

Comment from: nener, 55-64 Female (Patient)

I have had Meniere’s disease for at least 20 years. I take triamterene/hcz 37.5/25, one in the morning and one in the evening. I was also told to keep my sodium at 2,000 mg or less and to eliminate caffeine and chocolate from my diet. One doctor suggested I take Lipogen, which is a B complex formula with vitamin C. I believe this helps also, and it is cheap to buy, but you may have to ask your pharmacy to order it for you. You can also take Lipoflavonoid instead of the Lipogen, but it is much more expensive. Published: January 16 ::


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