Patient Comments: Marfan Syndrome - Treatment

What kinds of treatment have you or someone you know undergone for Marfan syndrome?

Comment from: Noneyabissshnizz, 19-24 Female (Patient) Published: March 28

I was diagnosed with Marfan syndrome at a very young age. I had one heart surgery when I was 6. At the time I was born they found a hole in my heart, said it was nothing and that it should close up eventually. Well, mine didn"t and required immediate surgery when they found it again at the age of six.

Was this comment helpful?Yes
Comment from: lenal, 45-54 Male (Patient) Published: January 17

For Marfan syndrome I take 100 mg olmesartan and 100 mg doxycycline once daily. I feel it has stabilized the disease and slowed down the bone loss.

Was this comment helpful?Yes
Comment from: braxton lover, 13-18 Female (Caregiver) Published: October 22

My friend has Marfan syndrome; she had surgery about 4 times.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Marfan Syndrome - Experience Question: Please describe your experience with marfan syndrome.
Marfan Syndrome - Causes Question: What was the cause of your Marfan syndrome?
Marfan Syndrome - Symptoms Question: What symptoms do you experience with Marfan syndrome? How do you cope with them?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors